Sunday, 12 October 2014

My friend Al said

As you will see it's been a little while since I last wrote a blog. There's been a lot going on, however it's not really been stuff I've felt like writing about as it's been mainly depressing,sucky and bad stuff. My friend Al says I should still write about this kind of stuff as it gives other people and insight into how things aren't always rosey, even though I am very lucky in being able to do more than most what with having great support and sponsorship in my prosthetic needs and being also supported in my future endeavours. Al went on to say I wouldn't be surprised at just how many people may relate to how I go through things and then  always find the strength to bounce back. I have to admit at the moment I don't feel very bouncy, never the less here I am. As I have said in the past, popping stuff down also helps me reflect a little and can help me figure out just where I'm going and what I should be doing to get there.

This of course won't be one of my most exciting blogs, however I do hope for those that read it you can see that all I am trying to get across is that there is light at the end of any tunnel.

One of the hardest things for me when I'm feeling depressed less than motivated, un-enthusiastic or can be bothered to do anything is knowing I'm being an asshole. It's as if I can step out of my own body mentally and I'm screaming to myself "Omg just pull yourself together, your an absolute nightmare to be around and I don't like you". I suppose this message must get through, however it doesn't pull me out of my mood, no it just makes me realise that yeah actually I am not much fun to be around so I tend to cut people off, don't go out as much, don't blog, don't Facebook, in fact I don't do much.I guess I don't want to be a burden and if I can't stand being around me, then why should other people have to put up with me. It's weird as it almost always happens around winter time. It's like some seasonal clock that ticks away and then come that time of year bang, happy head off, root around in the bottom of the wardrobe and pop on my seasonal downer head.

Even as I write this I'm thinking "yeah but it doesn't have to be that way" and "hold on a minute give yourself a break, there has been a lot of shit going on over the last few weeks". Anyhoo the purpose of my blog isn't to have you all feeling sorry for me, but I suppose it is a bit of a place to share what's going on in my life and that of some of my family and friends and of course that isn't always going to be good stuff all the time.

As anyone who reads my blog will know I lost my best friend a few weeks ago. Mr Hink's has been such a miss around our house. Well this didn't help how I was feeling. Following that I discovered I had 3 lymph nodes up in my neck. One of which has been there for years, right in my clavicle area. I hadn't ever been able to feel it before, even though it was the first one I was diagnosed with way back in 2008. Now though it's up and I can feel it. They are quite small, only being around 1cm in diameter. I managed to get in and see the specialist, had bloods taken and everything appears ok. I do have to keep going back for more regular check ups. You know what scares me the most about this Non Hodgkin's Lymphoma? It's not the treatment or the disease, No it's the recovery period. I hate it when your relatively healthy and then you have that whole period of illness. Recovering is the hardest part. But anyhoo lets not spend valuable time wasting energy pondering something that hasn't even happened. Something I have learned is that way too many people live in the past with the what ifs or wishing they had done something different, or look to the future planning ahead for events which may never happen.The "Right Now" totally slips by and they are unaware's, and its the Right Now which really counts.

A good few weeks ago both Al and myself decided to go biving.  John and Lee our other friends couldn't join us, John having done something to his back and being in lots of pain and Lee having just undergone surgery for a hernia. So Al and I set off ourselves and camped up at Smiddy Shore. I didn't blog about it as this was the start of me feeling crap. Anyhoo that night we were camping out I realised I had forgotten to bring my medication for my phantom pain. I had left it in my other back pack. "aww never mind I will get some tomorrow when I get home". So biving trip over I was feeling decidedly unhappy. My riding socket had rubbed me raw for some reason all the way up and all the way back home so I had a nasty sore on my hip. At the moment I'm riding with a check socket that Pace has made me and as with any check socket it's a temporary thing to iron out the areas where it's not fitting and then when this is sorted move onto what should be a comfortable final socket. So moving on I get home and figure "you know what my phantom pain isn't that bad I'm just going to quit my Pregablin". Now I should have known better as I once did exactly the same thing with another neuro drug back around 2009/10 and it sent me mental.

So long story short over the last few weeks I have done cold turkey coming off these bloody awful tablets. I've had all the usual withdrawals, but at least now I am drug free and aim to try and keep it that way. Yeah I have phantom pain and it's horrible, but I would much prefer to have the pain than be addicted to something that screws with my mind and even when I'm taking them doesn't do a great deal to help.

Well anyway there is a little insight into why I haven't been around. If anything I hope anyone who comes across my blog and reads stuff like this can see that just because I have all this good stuff going on, what with being sponsored by both Pace Rehabilitation and Brian Bartlett and then of course also being aided in my fund raising to help get me a running blade by Arctic ONE, that everyone can go through dodgy patches in their lives. Everyone is entitled to feel a little sorry for themselves. Saying that I would be a hypocrite if I didn't then go on to say one of my mantras in life is "that out of every negative, there is a positive, you just have to look hard enough". So what is it in this case? Well I don't have to think too long and I can come up with lots. For one when you're on the bottom the only way is up. When your down, you discover what good family and  friends you have, oh and you also discover that people don't just like you because you try to put on this act of being happy all the time and being the life and sole of the party. They like you for you and all your quirks.

I've found it's been really helpful chatting to my various friends near and far and when they ask "Hey Glenn how are you doing?", instead of replying in typical fashion "Oh yeah I'm ok thanks", actually saying "you know what I haven't been feeling so good". I guess I'm of the opinion if no one really knows then how can anyone help.

After all sometimes all we need is a friendly ear and someone to talk things through with,someone who doesn't say "pull yourself together and stop feeling sorry for yourself", but rather says "well we are here for you".

It's to those people I say a huge thank you too...

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