Monday 7 September 2015

Enjoyable jaunt out, but I can feel cells dying!

Had a really enjoyable ride out with John this morning. It was only a 15 mile local loop, taking in the Turbines on the Lonely road and more disgusting asshole fly tippers then down into Chapman's Wells. Then from there a ride back out and down to Holmeside , through the tail end of Craghead and down to Grange Villa. This is where we bumped into a very nice gentleman named Trevor and shared a good bit friendly banter.
Fly Tippers
Nice Filter on here
  Trevor asked about my prosthetic leg and informed both John and I he used to love to mountain bike, but unfortunately due to illness could no longer get out a s much. It was lovely talking to Trevor as I shared a certain empathy with him. Things like how at times you have felt like giving up, the "why me syndrome" and what the hell am I going to do now. Before giving yourself a good talking to and saying "you know what life isn't quite over just yet". Anyhoo long story short I told Trevor about my Blog and invited him to catch up with me on Facebook. We then discussed having a meet up at the Shepard and Shepherdess for a pint or tow. I love meeting new people and hopefully brightening up their day with a friendly "hallo". Life is so unexpected and you just have to go with the flow and grab all the opportunities you can.


  
Wheeeee!
Got to have a bit play
Even John joined in

 After saying shaking Trevor's hand and saying "bye", John and I headed up through Newfield, John getting the inevitable dog turd on his front tire. Well it wouldn't be a ride out with John if he didn't get some poo on his bike. It was then eventually across to High Handenhold where we got on the C2C and the route home. As we rode up the line I recognised my old boss from when I worked at Royal Mail. Melvin was a great manager and a gentleman I hold in very high regard. It was great to have a brief catch up.


Off the C2C and up Barn Hill, around by the indoor market and we were soon on to Stanley Front Street. I left John at his house saying "ta ta" and rushed down home to grab a shower. I was going to head out with my other friends Ade and Amanda and their middle son Jordan. I love hanging with all the Hair family as they are so warm and friendly. Ade and Amanda had invited me the day before to come along to the Hilltop and I "thought why not".


The Hilltop at East Stanley has all just been done out and made into a like proper prime beef type restaurant, that sells absolutely delicious steaks as well as fish and chips and other tempting things on their menu. I opted for a 12oz Rib Eyed Steak and wow was it beautiful, cooked to perfection, in my case medium rare. It was very reasonably priced to at £10.49. After the meal I was thinking I could possibly have polished off the 16oz, but not sure about the 32oz lol.

Mmmmmmm!
All in all a canny day like. Starting to feel the effects of the chemo again today. It's a strange feeling like yo can feel certain bits dying. I'm so tired right now. Quite a few people have commented I am maybe overdoing it, but I don't think so. I am feeling rather guilty being off work, so will see how I feel next week and hopefully make a return. Only 2 more cycles then I'm done with the chemo. I still have to go back and forth for antibody treatment of course for the next year and a half, but that is only once per month.

Ok will leave it there...

Friday 4 September 2015

A painful day some unavoidable, some self inflicted

Yesterday as my bloods were sort of ok to go ahead with my chemo I received my 4th cycle. Wow it was tough going. After the nurse gave me some antihistamines I became really tired and kept nodding off. Thing was I couldn't get comfortable in the awful high chair I was sat in. The arms were to low so I ended up with a crick in my neck as I dozed. Five Hours sat in that chair and I was stiff as a board. It wasn't all bad however as I got chatting to some rather interesting fellow patients. One of whom informed me she was a psychologist working for the Open University. I really enjoyed our conversation and I am very proud that I can hold an intelligent back and forth. To think of years ago when I was practically socially isolated I wouldn't have had anything to chat about, never mind know how to do it.

Following my treatment I felt a bit like a space cadet as well as feeling a bit nauseous. This hasn't happened on my previous treatments, well not immediately, it's usually a few day later.

Rachael has been a star keeping me going with friendly daily text messages as she is away. This has really helped boost my morale and I am so looking forward to seeing her again on Sunday.

Today as I was only getting the chemotherapy drug I wasn't at the clinic as long. Thing is today the infusion really did bloody hurt. The chemotherapy drug comes straight out of the refrigerator and as it went in i got a sort of hard to describe sensation. A bit like a burn, yet freezing cold. I suppose I can only imagine it as like a frost bite sort of sensation. I was so glad when it was over. Sandra the very friendly nurse gave me a towel to drape over my arm whilst the drugs went in. In an effort to keep my arm warm.

Following my treatment I decided not to ring Ern and get a lift home, no in my wisdom I decided to set myself a challenge and walk the 8 miles home. So off I set in a poorly fitting socket and my flat soled shoes. Both socket and shoes were to prove a nightmare. As I blistered on my sit bone and my good foot within the first mile. Ah well only another seven to go. By the time I reached about mile four I was really struggling. Just then Rachael gave me an unexpected call and this really helped me through the next mile and a half as we chatted. Rachael is so loving and caring and I could tell she was a bit concerned, saying "don't over do it, call your dad". "It's a challenge" I replied to which she giggled. I think she is starting to understand what I am like and admires my determination and positivity. These are two qualities that sort of drew us together and I am very proud I possess them. So many people just sit around and whine and bitch, instead of taking positive action to enrich their lives.

By the time I approached the top of South Moor bank and the traffic lights at the Arch I was in so much pain. The worst was yet to come however and that was getting down the bank to my house. I decided to use a tactic I use when out on my single speed a zig zag through the houses and down the bank. Eventually I got in, it had taken me 3 hours and 47 minutes not a record I know. I covered 7.85 miles and I also burnt off 828 calories which is a few KitKats.

What a relief taking my leg and shoe off. Ahhhhh! time for a nice bath.... OMG! that stings as the water touched my botty blister. Just bought some lovely honey bath and shower gel, it was so relaxing and really hit the spot. Not bothered if our Kayleigh says I'll smell like a lass.

Now out the bath and feeling rather proud yet rather sickly, tired and sore. A rest day tomorrow me thinks then I'm off to see Rachael on Sunday and can't wait.

Thursday 3 September 2015

When the bad stuff just fades away...

As planned,  my friend John and I had a cracking ride out yesterday. I think it is the furthest I have ridden this year, not sure, but definitely the furthest whilst undergoing chemo and the furthest on my Fat Bike riding with Surly Nates. Those tires drag so much.

A riding selfie, it's all the craze with the young kids I swear
Our adventure began as usual at my house. John had contacted me the day before and asked did I fancy a ride out. To be honest, what with my blood results being better and being able to spend sometime with the new lady in my life Rachael on Sunday, I felt on top of the world. Yeah! there are still certain aspects in my life which suck, like being ill and being off work, but hey these will come right in due course. At the moment I'm just feeling so much love from Rachael and all my family and friends who have been ever so supportive.

Saturday 29 August 2015

Baxter has an aversion to water.

A rather laid back morning this morning. Having decided to take my good friend William Rosche's advice I made a bowl of porridge and went on to put in various berries into the mix. There were blackberries,strawberries,raspberries and blueberries. William has advised I try to eat a more healthy and balanced diet and add lots of berries, so that's just what I did.

As the weather was a bit naff outside and I'm still not quite feeling myself I decided I would have a root through my mp3 collection and on Spotify and make an album up of old tunes I like and maybe some new ones I could discover.

My dad is on sorting my bedroom out as we have totally stripped it. The wallpaper is off, the old bed has been thrown out and I'm waiting for a new one to arrive on Tuesday. Skirting board have been replaced and holes filled in walls. New sockets, switches and door handles purchased as well as a rather cool Chameleon light which I am looking forward to seeing in action. I asked Ern if I could do anything to help to which he replied "No not really", so I continued  searching for tunes. Well I tried to, you see we have this mischievous pup who is into everything. I finally had to give up and go keep him occupied, of course this was after he had done his Andrex puppy impersonation. Funny how on the TV the adorable Labrador runs away with the toilet roll and gently rolls it out. A bull terrier doesn't do this, no he much more prefers to take it out in the garden and proceed to rip it to shreds and have it all over the place. That's another toilet roll down. As there were none left he then decided what the hell I may as well eat the toilet roll holder. So it was fun and games chasing him around the house to retrieve the holder.    At lunch time Kyle and I decided to have a little snack. I had bought some asparagus and Parma ham as I had seen quite a few people eating it on these cookery programs and was interested to try it. It's a real easy snack to prepare, just wrap the ham around the asparagus and bang it in the oven for 5 minutes and hey presto done. Kyle wasn't exactly sure if he liked it. I however thought it was rather nice and would definitely have it again. It is a good source of vitamin E don't you know.


Baxter was back up to his usual tricks and pestering Ern as he tried to get stuff done. So Kyle suggested we take him out for a little walk. "How about the forges down at Beamish" I suggested. So off we set in the car. It doesn't take long to get down there. As we drove to where we could park up, it was absolutely chucking it down. Baxter was not impressed in the least and dragged all the way in to the woods, his little ears pinned back and trying to shake himself dry.






Baxter not impressed at all

 Once in the woods we took him to the small ford. He gave us the look "Nope it's never going to happen". Eventually he figured out how to step over from stone to stone without getting his paws wet. As Kyle went over the bridge I walked through the ford and brought Baxter along with me. It wasn't too deep, but he did not like it one bit. A few riders on horses passed us by in the woods and Baxter wasn't to sure of these, giving a little unsure growl. Finally he started to get a bit more confident and began to lead the way sniffing and exploring. We only went a short way before turning around and heading back, yes I dragged him through the ford again.

Got back home and Baxter was filthy and we were soaked through. Just enjoyed a nice hot shower.


  
I'm stuck
     
Is that a horse I spot

Thursday 27 August 2015

Screw You Cancer!

Yesterday I received a phone call from the cancer specialist nurse over at the University Hospital North Durham. She asked had I been to get my blood tests done, as I was due to be having my 4th cycle of chemo on Thursday and Friday. Last weeks was delayed as my neurophils, something I know nothing about were low. Apparently your neutrophils are the most abundant (40% to 75%) type of white blood cells and form an essential part of the innate immune system. They are formed from stem cells  in the your bone marrow. Anyhoo mine were low last week and so I needed to have more tests done before I could go ahead with treatment.

 
What?
 

Wednesday 26 August 2015

Dodgy blood tests

After attending the chemo unit at Durham last Wednesday for my routine blood check I was informed there was a problem with my white blood cell count, something called neutrophils. This means my immune system is pretty low and I am at a higher risk of infection and becoming neutropaenic. All big words I know, not sure I understand everything myself.

I have felt real tired over the last few weeks and thinking I was going to get my chemo on Thursday and Friday of last week I had the days booked off.  I decided to still take the days and aslo take a few more as a sort of breather before I hopefully am allowed to go ahead with more treatment this Thursday and Friday. I just want to get it over with and then get back to some semblance of normality.

I'm really missing not riding as much, as well as not keeping up with my swimming. I'm really critical of myself and also really hard at times. So this lack lustre feeling of no motivation is really bugging me. Luckily I have some great support and it helps immensely.

Lots of things are going on in my life some not so good, whilst others are simply amazing. Lots of mixed up feelings and emotions that I am trying to understand, whilst trying to not over analyse and wreck everything.


Love this cartoon image and quote  so thought I  would share.






Monday 17 August 2015

Neglecting my duties, a short blog for a short ride...

It has been almost a month since I last blogged. I know this because my last blog was about what cycle I was up to and come Thursday and Friday I will be on with my next cycle of treatment. Wow where has the time gone? It seems as if four months have gone in the blink of an eye.

Most of this years posts whilst I have always tried to remain positive and optimistic have had a bit of a negative flavour to them, well I think they do. I think it's because instead of realising I'm doing quite well I am overly critical of the fact I haven't done as much as in previous years. Sometimes it's a good exercise just to stop and actually take stock and look back as we can find that in reality we haven't had a bad year, and hey it's not quite over yet.

Anyhoo I said I would keep this short so true to my word. Today following work I called in to see my friends John and his wife Christina. I also got the opportunity to see how John and Christina's baby, Amber is doing. I was quite surprised when Christina handed me Amber, it has been sometime since I held a baby. I didn't want to let on to Christina that the last time I held a baby was probably wor Kyle and I dropped him on his head. Of course only joking. I asked John did he fancy a short ride out and he was very keen. It's been ages since we rode together I just haven't had the motivation or energy, guess I'm feeling  a bit like Austin Powers when he lost his MoJo.

John and I headed out from my house after I got ready and took one of our all time favourite routes and the Farmers trail. Wow today was pretty hot and it sure did zap my energy. I'm pretty pleased with myself as although we only rode 10 or so miles we did take in 3 canny climbs and I didn't get off on any of them. Yeah I'm feeling tired now but so pleased I went out. In truth a certain person who shall remain nameless has motivated and inspired me.


    
John

Me on the Sandman

Coming down the trail

Like this shot

Getting closer

Nice shot of the Surly Nates

Lovely view over the hill of all the bales

My Arctic One band on top of some clay pigeons