What's going on with me and quite possibly you may learn something new....

Wow the beginning of this year has been a real mixed bag for me and my family. My son Kyle has been feeling unwell for sometime now with an upset tummy. This resulted in him having to go for 2 colonoscopies and he has now been diagnosed with Crohn's disease. And me well I fell ill with a virus on the 19th of January and ended up being off work for 6 weeks, going off work on the 22nd of January and not returning until early March. Man the virus really knocked me for six, it took well over 2 months to sort myself out and really I still don't know exactly what I had. I just know it was painful, really tiring and very stressful. I hate being off work and letting my colleagues and of course patients down.  I don't really write about work as there is a lot of policies in place about confidentiality, so it safest just to write nothing. On this occasion what I will say is everyone within the Newcastle Upon Tyne Foundation Trust were awesome and I couldn't have asked for better support.

Of course there has also been good news this year. I started my new job for Durham and Darlington NHS Foundation Trust as a Health Trainer. My first day being the 7th of April. No sooner had I started and a week later I was visiting my haematology doctor as I was experiencing really painful and swollen nodes in my neck. For those of you who do not know I have what is known as Non Hodgkin's Lymphoma.This "is an uncommon cancer that develops in the lymphatic system, which is a network of vessels and glands spread throughout your body" I was diagnosed with this in October 2008, roughly a year after having my leg amputated. At the time being diagnosed with the NHL had more of an impact than loosing my leg. I will readily admit not once have I ever said "why me" concerning the whole leg thing, but when I got the news about NHL for some reason it really knocked the wind out of my sails. On reflection I think it was because after years and years of pain and frustration, social isolation and feeling like a complete burden, having my leg off gave me a whole new lease of life. I was able to go out and do things and re-learnt how to ride my bike which took up a huge amount of my time. So to be hit with a new illness and then discover it was going to be with me for life, well at the time it just didn't feel fair, so in the early days I really struggled.

So getting back to this new episode and my painful and swollen nodes. My doctor suggested I have a scan within the next 2 weeks and we discussed possible treatments. These include chemotherapy for a 6 week period, which will be twice per week and also antibody treatment with a relatively new drug named rituximab. This treatment is over 2 years and is given once per week. Is it a shock? Well no not really I have been living with NHL about 7 years and as I understand it it was inevitable that I would require treatment, it has just come at a very inopportune moment, not that there is ever a really good one.

Once again I have been blown away by the support of work colleagues both over at Newcastle and within my new job for Durham and Darlington. Friends and family wise well I have always been very lucky and everyone rallies around. My poor dad (Ern) never complains he is one of the kindest, most reliable, stubborn old goats I know.

Now all that is left to do is await this scan, get the results and take it from there. If I do require treatment then all it will be is another challenge to complete as best I can. I aim to write about my experiences, hopefully other people can take something from it. For me my Blog is not only a way to share what I'm doing, but as I have said in the past allows me to reflect on what I have achieved or what I could do better or even in some cases just to fill a little time, though of that lately I haven't had much.

In ending I will leave you with a couple of links about both Crohn's Disease and Non Hodgkin's Lymphoma.

Crohn's Disease

Non Hodgkin's Lymphoma NHL

Treatment for NHL

Take care