Waiting is the worst part

       As we approach the end of another year and I reflect back, I have to say this year has been, without sounding to depressing almost a complete fail. 

      Of course there have been some exciting and positive moments, like my involvement in all of the success of the film "Meet the Local Hero", and the very kind invitation to travel over to Spain from my friend Dragos, the director to spend time with him and his partner Ana, then being able to attend the film screening in Barcelona, at the Love & Hope International Film Festival. 

Dragos and myself during filming

      There has been the help and support of various generous people alongside the Arctic ONE Foundation, on my Go Fund me page in trying to help me raise enough funds to buy a new G3 Infinity Knee, so that I could continue riding. 

  

Arctic ONE - what an amazing foundation

G3 Infinity Knee

      And there is the fact I have found trying to write a book quite intriguing, and have enjoyed the journey of reflection and putting my thoughts and memories down. There is still a lot of work to do to get it all finished, mostly to do with grammar and getting a front and back cover done, however the story is just about at a point where I am happy.

      And so to this year and why I consider it a fail. Well I decided to treat myself to a new ebike, way back in May of this year 2024. After doing some research I opted for a Cannondale Moterra SL. I contacted Wheelbase in Darlington and went down to put a deposit down and place my order. I knew with the bike being a new model it would take some time to arrive, however whilst waiting I got my eye on a different model bike, so I decided to change my mind, and opted for an Orbea Rise M10 LT. I custom specc'd the bike down at Wheelbase and then I waited, and waited, and waited some more. Finally after waiting over 6 months the bike had not arrived, and I was informed it wouldn't be here until possibly December or even later. Apparently there was a problem with getting components.

      Now at this point I must make it clear, Wheelbase had done everything they possibly could to get the bike to me, it has had nothing to do with their customer service. I spoke to another local bike shop lately and they stated they have had the exact same problems when it comes to delivery times from Orbea. The same thing actually happened when I was looking to buy my Orbea Gain, I just couldn't get a bike for love nor money at the time.

      Anyhoo just this week I cancelled the order for the Orbea Rise with Wheelbase. There are other reasons, other than the long wait. I currently have stuff going on that have me kind of all over the place. If you are a follower of my blog you may have read that I have been going through some health issues, which funnily enough started just after I ordered a new bike, oh and when my old Bartlett Tendon Knee started acting up and became pretty much un-useable. 

   

Orbea Rise Cancelled - Took way too long to arrive

      Going back to this health thing, I originally thought I had just picked up a really bad bug from work, however after a prolongued period of illness I was to discover this was not the case. 

      It has hit me really hard as my intention was to save up for a new bike, then my knee fucked up so I started the GoFund Me, and then this whatever it is health problem started getting worse. Obviously best laid plans and all that have not gone as I thought. I think I must have been off work going on 6 or so months this year, with what had been described as Ulcerative Colitis by the Inflamatory Bowel Disease clinic.

    Things got a little better following the taking of some predisanone which are steroids, these allowed me to take the trip over to Spain and even do some riding, however upon my return home and gradually coming off the steroids I found I was feeling unwell again, which has meant more time off work and I cannot ride my bike. I just feel so unwell. Whatever is going on has me wiped out, and in so much pain, alongside lots of stress.

      Having been back to the IBD clinic and now been put back on steroids alongside another medication, Salofalk Granules I am now waiting more investigations, this is to be another camera up my hoop, something called a Flexible Sigmoidoscopy and a MRE, which is similar to a MRI, however is apparently better for observing soft tissue.

      My IBD nurse has been wonderful in her support, she says there is a Big question mark over my diagnosis, and I am a trickey customer, due to my past history with the Non Hodgkins Lymphoma and having treatment for that. Now that I am needing more tests  I am obviously concerned, however trying to stay positive.      

      I just feel my whole life is back in limbo again, waiting for a definitive diagnosis, and then to see what will happen. My health has to come first as without it I can't do jack. I am stressed about work, and I know I will have the Department of Work and Pensions on my case and the awful people over at Universal Credit. I was sanctioned £800 the first week I was forced onto this new benefit system, and went from disabled tax credits which I used to receive from HMRC without problems.

       Now recently I have been sanctioned by Universal Credit, 2 months in a row since being on the sick, and I have been informed I owe £900 quid back. The people at Universal Credit took great delight in telling me there is no such things as "disabled tax credits", basically you are treat like a benefit scrounger. I hate it on the rare occassion when I do have to attend the Job Centre, as you have to face the demeaning glare of the so called advisors, who look at you like you are pure scum. I don't get a great deal a month from the government, it's just supposed to be a little help to bump up my wage, to meet the national standard. I have had to reduce my hours at work, as I have been struggling for sometime, so I am now down to 24 hours per week, well when I feel well enough to even go.

      Man this all sounds like doom and gloom and I apologise if you are reading this and thinking " Wow I could do without reading all this negativity", however my blog has always been about telling it how it is. Life for a lot of people isn't like in the movies, or like on social media, where everyone is trying to portray this amazing, yet fake lifestyle. Yes I have had a bit of a whine in my relaying of events, or is it more of just getting my thoughts out there ?

      You see I find writing stuff down helps with my thought process. I know I have faced serious health concerns in the past, so although I am stressed to fuck at times, due to the unknown, I also feel pretty well equipped to deal with what is to come. The best bit of advice I can give anyone, I guess is to talk to someone and try not to keep things bottled up. Although it may feel like moaning and it can get tedious as your whole life appears to revolve around whatever problem you have, talking to someone you trust can help relieve a great deal of pressure.

Of course I also have that internal dark side to me, and if you know anything about me you will know I love quotes. This one is by Lou Holtz who used to be an American football player, coach and analyst, and it goes like this...

" Never tell your problems to anyone... Eighty Percent don't care and the other twenty percent are gald you have them"

      I just keep telling myself take one day at a time and live in the moment, the past is the past and the future is not here yet so it is no good getting all wound up, of course its difficult, however I am a lot better at stopping my over active imagination and telling my inner voice to do one, when it starts with all its negative questions and scenarios. At the end of the day this is just life, and part of my journey.

     I am going to focus on keep going with my goal of getting a new G3 Infinity Knee, and looking ahead to getting a new bike so that I can follow my passion of being out in nature on some beautiful trail or another. It kind of reminds me of way back in 2007 when I knew I was going to have my leg amputated. I bought a new bike, way before my surgery and that was the inspiration to overcome and move forward. 

     Future inspiration a picture for now...

Santa Cruz Heckler SL

For now I will probably wait a little while for a more positive diagnosis, then I will know exactly what I am dealing with, and I can figure out a way forward. Hey its just another challenge Right?

22 Minutes of Fame in Spain

           Well, here I am in Spain, writing parts of this blog, I will finish it upon my return. 

  

So fortunate to have these guys as friends.

My dad had taken me to Newcastle Airport, on the 17th of September, and came inside with me briefly. The parking charges at Newcastle Airport are extortionate.

It has been some time since I last travelled, 2013 to be exact, when I travelled to America, which was my first time taking a flight and being outside of the UK, so not being experienced I found trying to find my way around the airport quite daunting. I could feel myself getting anxious, however, I am getting better at understanding my inner feelings, so changed this to a more positive "Oh you are just excited". I decided to approach the man on the Bureau de Change and after getting initial directions I figured out the next steps to eventually get to the boarding area.

I was flying with EasyJet and have to say the plane was a little smaller than I expected. My recollection of my last flights all those years ago where of bigger planes with more room, this is of course, when I think about it, was because they were International flights, taking many hours and not just a 2-hour hop over. 

The flight over was without incident, I was in a window seat and as we were coming in towards Alicante I could see the sky light up with flashes of lightning which looked amazing.

Hopefully not to many Err's, Ahh's and Mmm's as I get interviewd at BBC Radio Tees.

 Things are going very well with the short documentary film I was invited to be featured in. So far, the film has won 6 awards, and it is still in the running to be chosen for more. As I posted last week, I had some exciting news about the film being screened in Barcelona and being invited to the event, I am so excited not only to attend the screening in September but also to get to spend some time with some of the amazing people who worked on creating and telling my story about part of my journey and who are also now dear friends and lovely people.

I have often been asked, "Where and when can we see the film?" well, I am sure at some point, it will be available to the general public however, for the time being, it has to do the rounds at film festivals. Rest assured, as soon as I can pop a link to the full film, all 22 minutes of it, I will. The film has quite an emotional effect on me each time I watch it. I think, No, in fact, I know that Dragos has captured something in the film that is very special.

With regards to the film and me now having to find money to privately fund my sporting prosthetic needs, I thought it may be a good idea to get in touch with BBC Radio Tees and see if they would be interested in my journey, encompassing the ups and downs of what has been going on.

Go Fund Me

Within the hour of firing off an email, I got a response from Dave Llewellyn, a producer and presenter over at BBC Radio Tees. Dave simply said, "What a Great Story," and we arranged a quick chat on the phone. I was then invited to BBC Radio Tees on Friday morning (yesterday the 30th of August) to meet with another presenter, Gary Philipson.

Real pleasure to meet with BBC Radio Tees Gary Philipson, what a nice fella.

The interview aired on the 30/08/2024

BBC Radio Tees Interview with Gary Philipson - I totally forgot to mention my Go Fund Me and the title of the Film- which is "Meet The Local Hero - Glenn Johnstone"

The film can be found on Internet Movie Data Base and has a Facebook Page. It has recieeved some very positive feedback, as it deals with things such as disability, love, family and overcoming challenges.

Upon arrival at the Radio station, a parking place had been reserved, and everyone at the station was very friendly and welcoming to my dad and me. We were invited in by Dave and taken upstairs in a small lift to a long waiting area. Here, we were invited to a drink, coffee/tea, and we had a little chat with Dave, before Gary came along and took us through to the Radio room with the recording set up.

On my previous visits, I had done live broadcasts. However, this time round, it was to be a recorded interview that could be edited and aired at a later date on Dave's show.

We pretty much got into the interview straight away, Dave checking his equipment and then starting by saying, "Let's start with your name". It's always slightly nerve-racking when you are trying to think of answering a question, trying not to ramble on and the dreaded "Err's, Ahh's and Mmm's" that can occur as you try to give yourself time to think. From my point of view, poor Dave hardly got a word in. However, he did ask some pertinent questions, which allowed me to explain what was going on.

 

BBC Radio Tees with the Ern

In hindsight, although I had mentioned the short documentary,  I wish I had mentioned the name of the film, which is "Meet the Local Hero - Glenn Johnstone" I think I have mentioned in previous blogs about the film, but I most definitely did not choose the title. I don't proclaim to be any sort of Hero I am just an ordinary bloke who has been through some extraordinary circumstances. What I do find remarkable is, upon my journey, some of the amazing people I have had the great pleasure of meeting. In a world that appears to be going mad, there are some really genuine, nice folk out there with their own interesting and important stories and messages of hope and inspiration.

Following the interview, we said our farewells, and Ern and I went for a cruise in my wee Abarth 124. It was a lovely day, so we had the top down. My dad directed me over to the Transporter Bridge, and I got a few shots for posterity. We then head home via Costco at the Metro Centre, this little car guzzles fuel I can't get it over 31.1 mpg, and I drive like Miss Daisy. 

  

Abarth 124 Spider at Middlesbrough

Me and the wee Abarth 124

  

Here's one of The Ern

On the ride home, we encountered one speed bump which my car scraped off. This is after having my car fitted with coilovers and lowered, plus larger wheels fitted. As I recall, the bump was somewhere near Wingate. My car also scapes off the mountain of a speed bump at the end of our street. When we got home my dad got changed and jacked up my car, popping it right up on ramps so that he could have a look underneath to see if he could see exactly where it was catching. Ern removed the under tray protecting the exhaust, and it became clear the protective skid pan was the culprit. I'm just pleased it isn't my exhaust I can live with the pan doing its job. My dad refitted the pan, and the car is now all good.

The interview aired on the 30/08/2024

`

The 3 Amigos Fight the Wind

 What a most excellent morning I had this morning. I mean not only did everything go to plan, I was able to find my bike kit, my bike turned on and connected to my phone immediately, my new Oakley Sunglasses with Trail Prism Lenses are awesome and I can actually see, and to top it off meeting up with my two compadres Lee and John who I have not been out for a ride with as the 3 Amigos in like what seems forever.

The 3 Amigos

From meeting up with the lads we were soon into  fantastic banter and reminiscing about the good ol'e days and some of the funny adventures we had previously been on, on our bikes. I really do hope this year we can make it another year to make some new memories and get out more together, as that is what life is all about.

Even though the weather man, or woman had said it was going to be windier than yesterday, and I think they were right, it didn't take away from how much we all enjoyed meeting up and spending time in one another's company.

  

Love my Orbea Gain

Bike isn't great in the slippy bits Whoooaaa!

Riding in the sheltered areas wasn't so bad, like going through South Moor Park, and parts of Chapman Wells. However going across from Maiden Law to towards Burnhope and then going down the old Peth bank was canny windy, so much so that I was only doing 9mph and having to pedal down the Peth. Normally I can do 30 to 40 mph down there no worries, and boy riding up the Lanchester Valley into a head wind was tough.

Not often Lee is behind me

Lee

As usual John and I were trailing behind Lee. Lee is like the Energiser Bunny and just keeps going and going and going LoL.

From the get go John had been informing us of his desire for a Cornish Pastie, not just any old pastie mind you, Oh No, according to John these are the best Cornish pasties in the world. As we got nearer to Knitsley and the farm shop, his hankering had not diminished and I actually think he sped up somewhat.

  

John and Me

Love been out with the lads

John came out of the Farm shop and didn't appear to dismayed that he had not been able to obtain the best Cornish pastie in the world (allegedly I don't want anyone suing me) instead he had gotten a corn beef pastie, it must have been good as he almost took his fingers off with the first bite Lol

 

Could this be the best pastie in the World ?

Off we set once more facing the wind towards Consett, John now packing "Pastie Power", we eventually come up past the old red Wagon on the cycle track near Hownsgill and we headed back towards Stanley. The ride home became easy as we now had the wind at our backs and it really did push us along.

A liittle bit of single track after crossing the main road at Greencroft and we came out at Dodd Terrace and then it was easy to get back on the C2C at Anfield Plain.

As we got to John's house he popped in to go and get his wee dog to show Lee. John's dog is a cute little fella, proper friendly. John, says he is called Bruno, but I call him Frank, I think he looks more like a Frank. I like to wind John up, however he knows what I am like and always takes it in good fun.

19.1 miles done. It was a fairly hard ride, due to the wind, but well worth it for the craic and hanging with good m8's.

  

Frankie... Err I mean Bruno

Frank n John

Ooh and the day hasn't ended just yet., more excitement with a little added nervousness, as the short film I was featured in is being privately screened at Newcastle tonight. 

 

I didn't choose the title `LoL

I have invited friend and family and hope it goes down well and they all think the film is something special. The film is still doing well having received 6 awards at various film festivals.

Well I had better head off and try and make myself look pretty Bye for now.

3 Awards From The IndieFest Film Awards

Following my ride out this morning I retuned to some fantastic news from my good friend Dragos who shot the short documentary telling my story. Dragos informed me that the film had been awarded 3 awards of excellence. This is awesome and hopefully just the start of more awards.

From my point of view I don't consider myself to be a Hero, that is the title of the film, which was created and presented to me way before filming even began. The concept and ideas, the creation to the final result all goes down to the dedicated hard work of the team of people who put so much time and effort into capturing part of someones life and retelling their story, trying to encapsulate the highs and lows and hopefully inspiring an audience.

I feel so grateful to have been invited to recount my story and as an added bonus met some amazing people. A huge thank you to everyone involved and also to Indie Fest for the recognition.

Meet The Local Hero - Glenn Johnstone has just been honoured with not one, not two, but THREE prestigious awards from The IndieFEST 

Film Awards

Award of Excellence Special Mention - Documentary Short

Award of Excellence: Disability Issues

Award of Excellence: Editing

We are over the moon with gratitude and excitement! 

 Huge thanks to The Indie Festfor recognizing our film in these categories.  It's a testament to the incredible efforts of our dedicated team.

To everyone who supported us on this journey, THANK YOU!  Your encouragement and enthusiasm mean the world to us. Stay tuned for more updates as we continue to share the inspiring story of Glenn Johnstone, our Local Hero.

A Teaser for " Meet The Local Hero" A Dragos Teglas Film

Hello and Best wishes for the New Year, its my first post of 2024.

Already a mixed bag of really exciting Highs "Yay" and really stressful and frustrating lows "Boo"! 

My blog as anyone who likes to follow it or comes across the various things I post, will know it is about keeping it real. I don't live in a Social Media world of fake news and endless rays of sunshine where my life is super hunky dory every single day. Nope I am just an ordinary bloke, who like a great deal of other people is trying to make the most of this thing we call life, find fun, love and happiness and try to put all the other crap to one side.

You may ask well what is going on ? Well I will start with the Low as I would like to end on a positive. I mean who wants to listen to someone whine on right?

Basically it's the same old same old and for those amputees out there you will totally get this " Socket Fit". I was off work 4 1/2 months at the start of 2023 as my socket was killing me. I was bottoming out and basically mobilising weight bearing on my cut femur. I attended the Disability Service Centre and after a number of visits a socket was produced and "Aww Crap" it didn't fit. I then just informed the DSC and my prosthetist to put my old socket back on to my knee and went back to work. Well it's been over a year, walking around with an ill fitting socket. I have tried all sorts, of temporary fixes, extra stump socks, two, even 3 seals and it hasn't really solved the problem. Tomorrow I am back to the DSC I have been seeing a new prosthetist and hopefully I will be getting a "Boa adjustable socket" and it will fit and I can go on my happy way. I am trying to keep an open and positive mind, as man this ill fitting socket has really knocked my confidence in my mobility and has me in a right moody frame of mind. It doesn't help that my cycling socket is an exact replica of my current everyday socket, so although I am still cycling everyday, mainly on my indoor Turbo Trainer, I am constantly having to stop and adjust my socket.

And that is all I have to really complain about.

Okay, positives, well last year I was invited to take part in a short documentary film. It has now all been put together and is just about due for release. Dragos the film maker and now very close friend keeps me updated and he was very pleased to announce that the film has been nominated so far for 5 film festivals. This is great news and so exciting.

 

I am no longer on Facebook, however I know "This is Insomnia" the production company has a Facebook page.

Checkout: https://www.facebook.com/meethelocalhero/

There is also a video teaser here at Vimeo : https://vimeo.com/901888387

I really would like to see the film do well, not because I consider myself a local hero as the title suggests, no its because Dragos and everyone involved in the making of the film have put so much hard work into its production. Dragos wanted a specific message to be taken from the film and I think he has captured that. The fact that as I have said I am just an ordinary lad, I was never going to be a world champ BMX'er or Downhill racer, no I just wanted to get back to doing something I had a passion for from being a young kid and that was riding on 2 wheels, making my own adventures and seeing where the trail took me. I am not a competitive person, the majority of challenges I have faced in my life have been personal ones, and these have all shaped me into the person I am today, hopefully with a positive message to do what makes you happy and try to overcome your own personal battles.

A huge thank you to everyone involved in the making of this film and I look forward to peoples take on the film.