Friday, 26 November 2021

Looks so good I don't want to take her out and get her dirty!

 Sometime in August of this year I made a post about waiting long enough to first decide if I really needed another bike and then if I could warrant spending more money on one. 

Orbea Gain M20
Orbea Gain, now a M20 1x

I had thinned my fleet of bicycles down from 10 to 6, so figured one more couldn't hurt. I had had my eye on this particular bike for some time, an Orbea Gain  M20 1X gravel bike, which is an eBike, however the bikes always appeared impossible to get a hold of.

Orbea Gain M20 X 1
Bike comes with its own lights

Orbea Gain M20 X 1
Easy to use iwoc button to operate bike

Orbea Gain M20 X 1
I would have preferred a bar mounted power button, but sure I will get used to this frame mounted version.

Originally, I had set my heart on a stealthy looking grey coloured version, but like I say no matter where I looked online there were non to be had in my size, which for me is a size Large. I then saw Leisure Lakes Bikes had an Ice Green size Large M20 for sale, so smashed open my piggy bank and pretty much without a second thought put a deposit down on the bike and sorted out the finance for the remainder.

Leisure Lakes Bikes then organised to get the bike to me via a courier, and the bike arrived on the 19th August.

I have to say the box which the bike came in was absolutely "Humongous", however it was also the best packaged bicycle I have ever received. All I had to do once removed from the box and all the protective packaging was fasten the handlebars in place.

I then stood back to admire my new ride, she sure did look better than the pictures online and the design is beautiful. The bike having internal cable routing and this being the carbon frame model. Other than the weight due to the batteries you can hardly tell it is an eBike. The bike having a MAHLE ebikemotion X35+ hub motor. I wanted something simple, so opted for the 1 x 11 drive train.

Orbea Gain M20 X 1
eBikemotion X35+ Rear Hub
 

After checking the bike over, my dad asked should he get rid of the huge box, saying he would have to cut it in half to get it in his car to take to the tip. I figured we wouldn't be needing it, so made one final check to make sure nothing was left in the box, then gave him the go ahead.

My next though was to use the QR code on my bike and go online and register the bike. I got all the way to the end completing the relevant information for the warranty, when I happened to notice, just by chance, a message congratulating me as I recall on registering my new Orbea Gain M30. Hold on a minute, did you almost miss it too? M30 I thought I am sure I ordered an M20. I then had that sinking feeling.

I immediately went downstairs to my new bike and started checking her out for signs of different components to verify what model I had. I also asked my dad to bring up on his computer what the difference was in the two models, so that I could do a quick comparison check.

I discovered some tiny writing on the back of the brake calipers so used my camera on my phone to take a picture and sure enough it said Shimano RX 400. Oh dear, not good. Upon further inspection, it became clear that I had the wrong model bike.

 

Orbea Gain M20 X 1
New Shifters RX-810's with a dropper lever on Left Lever

Orbea Gain M20 X 1
New RX-810 Calipers

By this time it was about 16:45 pm. I rang Leisure Lakes Bikes and fortunately got to speak to one of their supervisors. He explained that he was off the following day, but that he would pass the information over to someone to follow up with the next day.

I wasn't really hopeful that anyone would contact me the next day, as many of you will no doubt have had the same experience when buying stuff, it generally takes a few calls to get anything done. So imagine my surprise when a very friendly chap called Jack got in touch and explained the situation.

Apparently the bike I received had been at a different Leisure Lakes Bikes store and had been mistakenly put in stock as an M20 size Large. Jack had contacted Orbea, and they had informed him that there had never been an M20 delivered to Leisure Lakes Bikes. Well, that solved that mystery.

Jack then offered me a few options, with no pressure.

1. return the bike and get a full refund of my deposit, saying he would ship a new box up and all costs would be paid for by Leisure Lakes Bikes.

2. Keep the cheaper model bike and have the difference refunded.

3. Keep the bike and Leisure Lakes Bikes would get in all the components required to upgrade my bike to the M20 model I wanted at no further cost to myself.

I explained to Jack option 3 sounded good, as the reason I wanted the
Shimano ST-RX810 shifters was that they are dropper seat post compatible.

Jack then said to leave it with him, and he would see if a dropper post could be retro fitted. Something Orbea informed me couldn't be done due to the battery pack. Oh! And I also asked Jack could he have my bike wrapped.

A few days later Jack got back in touch saying yes he thought a dropper post could be fitted, however the other components would take a little while to come into stock, asking did I mind waiting. I thought I had waited this long, what was a few more weeks/months.

Orbea Gain M20 X 1
Mahle mini computer that came with the Orbea

Orbea Gain M20 X 1
X-Fusion Manic Dropper post successfully installed and working a treat

And so last Saturday the 13th November, my dad and I went down to Leisure Lakes Bikes at their Leeds shop and picked up my new ride. She is completely upgraded to an M20, with an X-Fusion manic 27.2 dropper post, activated from the Left shifter, and she has been wrapped to protect here and looks superb. I have some TIME ATAC XC pedals to fit. I know they are more Mtb orientated, it's just I hate wearing road shoes and using road pedals as when I need to walk anywhere in the shoes I am all over the place. Plus, I always get a nice secure clipped in feeling using my Time pedals, essential when using my Bartlett Tendon Knee.

Orbea Gain M20 X 1
Time ATAC pedals

I haven't as yet had a spin on her as I am having serious socket issues and have a poorly painful stump, plus in all honesty she looks so good I don't want to get her all dirty.

Orbea Gain M20 X 1
The bike looks stunning

Orbea Gain M20 X 1
The protective wrap is flawless

I know things didn't go as planned with the bike at the start, however I can't fault Leisure Lakes Bikes for their customer service, how friendly and professional they were, especially Jack who rang and emailed me throughout the process Oh! And for their attention to detail, plus the handover of my bike down at Leeds.

Thanks Guys.

I will give a more in-depth review of the Orbea Gain once I get my butt in gear and I head out on her.

Sunday, 21 November 2021

When being an amputee really sucks!

 Just a heads-up no pictures with this particular blog, as I mean stump pictures aren't exactly pretty.

I have never asked the question "why me?" with regard to my amputation or even when I got diagnosed with Non Hodgkin's Lymphoma a year after having my leg off. 

 I mean what is the point in questioning things that you can't turn the clock back on. It gets you nowhere, other than possibly feeling bitter, angry or depressed.

That said, I am not saying I don't get frustrated with my situation. Never more so than when my leg is not fitting properly, and it is causing me no end of grief.

At the moment, I feel as if every step I take is going to fracture the end of my wee leg (stump) I hate that word. You see although when I get on the weighing scales I don't appear to have fluctuated much in weight, my residual limb, wee leg, stump call it what you will has shrunk. It's probably about the size of my arm now. My socket, which I have had for going on over 4 years now, just doesn't fit anymore. I'm gutted, as this is the best relationship I have ever had with a socket in my fourteen years as an amputee.

Like I say, I have been an amputee for, Oh! About 14 years, and I have tried every trick I know to keep my prosthetic limb in place. This includes extra stump socks, there's that word again LoL, extra seals. I have tried sticking bits in my socket with Gaffa tape. Tried raising the seating area, with bits of foam and Gaffa tape. I have even cut a piece off a Yoga matt, made it into a circle, Gaffa taped it and then tried slipping it around the seal. Oh! And let's not forget using  Mepilex Borders on the end of my stump Grrrrrrr! And I even experimented with putting a pair of socks inside my socket before lowering myself into it, just to try and cushion the area where my bone rests on my socket as I walk.

If you are not an amputee and a "Norm" Lol let me try and give you an idea of my daily grind. So imagine you have had your leg lopped off, above knee of course and the doc has cut through your femur, that is the large thigh-bone. Now imagine putting all your weight on the end of that bone. It's like having permanent toothache but in your bone.

Awwww! Great I am now getting serious phantom pain.

Oh! That is just the physical side of things, I haven't even mentioned the mental side. I am not sleeping, I think this is due to stress and anxiety. You see, I am a pretty active lad. I am continuing to do my daily challenge of riding every day. This is not so bad as the pressure from my socket is not directly on the end of my stump, as long as I don't stand out of the saddle, something I can no longer do to be honest. What is worrying me is getting sorted and possibly having to give up my passion of riding my bikes. Then of course a big issue is work, I am stressed to hell as I can't do my job to the best of my ability, and feel like I am letting everyone down.

I am terrible at accepting kind words, and quite recently have been told some lovely stuff relating to how I work with patients in my job. Of course, this all goes out the window as "Critical Glenn" jumps in and presumes people are carrying me and feel sorry for me.

This year has been an incredibly hard one for a lot of people, what with Covid, and I don't want anyone thinking I am writing a blog bleating on and whining full of self-pity. Unlike Facebook, which I came off a few months ago, I like to keep things real and allow people to see what really goes on, the good the bad and the ugly, not all this false crap that folk post about and how their lives are amazing.

I am sure someone somewhere will read my blog and be able to think "man I am not the only one" and take some sense that you are not alone.

Of course, I am not going to end there, I absolutely refuse to give in and will work through these problems like I always have. I guess writing this is a good way for me to also release some tension.

Friday, 24 September 2021

Watch & Wait

 It has been 13 years since I was first diagnosed with Non Hodgkin's Lymphoma. I can remember clearly when it first kind of started. It was upon a ride out with my friend Carl, and coming up through Beamish and No Place. I just was not feeling quite right and at the time had terrible stomach cramps. Strangely enough these cramps would come and go, however upon each episode they got increasingly worse.

Anyhoo Carl and I had been on a day out riding up at Kielder Forest, we had had a brilliant day however at some point I had snapped the bottom bracket of my brand-new carbon fibre bike. So upon our return I had contacted the bike retailer,  Stiff who were based down Leeds way. My dad and I took the bike back to Stiff and upon inspection they agreed that the frame would be replaced under warranty, however I would have to wait around 6 weeks for a replacement from the USA.

Back in 2008 and being silly

Great memories of a day at Kielder
 

After roughly 6 weeks, my bike was back together with a new frame and my dad and I went down to pick her up. This is the part where I can recall feeling proper poorly and knowing something just wasn't right. I was doubled up in our car with the most horrible stomach pain, on the return journey, so once near home, my dad took me straight to A & E at the Queen Elizabeth in Gateshead. I had had my leg off there in the September of 2007, so we thought going there was probably better than going to Dryburn at Durham, which would have been my local hospital.

After spending hours at the QE and being poked and prodded, and very friendly doctor who had examined me came in and informed me he had discovered an unusual lymph node in my neck. It was near my collarbone on the Left. He advised he would be making an appointment for me to see a consultant near home, so Durham, and that they would take it from there.

A few weeks later, I met a friendly consultant called Dr Keenan. What I liked about her was not only her voice, as she sounded a little like Mrs Doubtfire, but her candid approach. Dr Keenan said to me "I have some good news, and some bad news"... "Oh here we go I" thought. "So, what is the bad news?" I enquired to which she replied "Oh, you have cancer". "So, what is the good news?" I asked. "Oh, it is the best one you can get". This left me a little perplexed, however as I look back on it now I just kind of thought "Huh Ok".

In 2015, I had to undergo chemotherapy, which to be fair wasn't too bad compared to some poor folk. The worst bit was the additional antibody therapy, which totally had me wrecked and lasted almost 3 years.

As time went on I was armed with information and supported through the Non Hodgkin's, the consultant and specialist nurses always on hand if I needed someone to talk too. I think the hardest thing to deal with and this is where I am leading with this particular post is the "Watch & Wait". I find it very difficult to deal with this and at times don't particularly know what I am waiting for.

I am very good at going each day without ever thinking of this thing attacking my body. I have a dark sense of humour, so find it ironic that even my own cells don't like me LoL and from what I know that is what cancer cells are. I have heard them called "eternal cells" as unlike normal cells they don't die off, they just duplicate and spread.

So to last week, upon getting up on Wednesday morning I had an upset tummy. I went to work, however as the morning went on I felt increasingly unwell with an upset stomach, and I was sweating and felt all clammy. The girls at work are all very supportive and immediately noticed I didn't look good so were fussing around, checking my obs, opening windows and popping a fan on. I then became freezing cold and just thought I had some sort of bug. I booked a Covid test and then went home, having booked the test for 1 PM down at Chester -Le- Street.

Anyhoo the test came back negative, however I haven't felt well all week and this is that part of Watch & Wait I hate. Once I am feeling unwell with my tummy, it always brings back memories of that first time riding up through Beamish and the start of that period of my life and well it sucks.

After speaking to a G.P over the phone, although he was very kind, supportive and friendly, it has still left me not knowing exactly what is going on. The doctor came up with a few thoughts, yes it could possibly be a flare up of my Non Hodgkin's, however I don't really have any other symptoms. It could be a bout of gastroenteritis, or after the doc read my notes, he thought it could be stress & anxiety.

It has been hard going back to work after 9 months of lockdown, however I don't feel particularly stressed, but hey that is the thing with stress and mental health it can kind of sneak up on you. Sometimes you can ask yourself the question and your mind lies to you, however your body reacts in a different way. I will admit, a good few months ago I was going through a low period, however using some strategies like being kind to myself, meditation and exercise buoyed me again, and have kept me afloat. Of course, I am still a little down that I keep seeing "dream houses" in Scotland and know in a perfect world where I would be and what I would be doing. I enjoy this imagining, it can take me away and well if something does come about I will already be prepared and have a plan of action.

Going back to feeling like crap, I decided to test myself today and have a ride out with my friend John. I figured if I could get a few miles in and feel relatively ok I would be ok for work on Sunday. We rode a local loop of just over 12 miles down Beamish. I was quite impressed with myself as I didn't use any power all the way up the farmer's trail and actually for a fair amount of other sections. The turbo trainer is continuing to give me a good workout. I have been switching the resistance level up just to make things interesting.

And so as I write this, almost finished, I continue to have a dicky tummy and not feel 100%. I guess time will tell what is up.

I'll leave you with a few pics from today. I have put them at the end as I can't be arsed to slot them in to my story, Lol

Ok off to dream about a cottage I have seen in Argyllshire...










Friday, 10 September 2021

Just making it up as I ride along.

 I awoke pretty early this morning, for some reason it's a regular occurrence these days, however I didn't get up immediately and lay contemplating should I go for a ride and if so where to. I feel sometimes I don't head out as it's just the same old, same old, and I get bored with the routes. I mean, I have been riding since around 2008 and pretty much know everywhere fairly local.

Anyhoo I finally convinced myself to just get up and go and make it up as I went depending on how tired or socket sore I got. I took my Specialized Turbo, figuring if I got a bit fed up from home, I could just take it easy and switch to Turbo mode.

It didn't take long to get sorted, once I had reattached my Cams and Tendons to  my BTK Crossover knee. I filled my Arctic ONE bottle with some fresh water from the fridge and transferred some gear from my backpack to my Camelbak "Fanny Pack". When possible I prefer to use the small fanny pack as it is light and easy to just turn around whilst still fastened to access stuff.

I got my bike out, switched it on and connected it to my phone, and then I was off in no particular direction.


"Ooh the farmer's trail, it's been a while since I have ridden up there", I thought, my bike didn't appear fussed which direction we were going, so we headed for the trail.

Glenn Johnstone Specialized Turbo
Up the resurfaced Farmer's Trail

Glenn Johnstone
Down the Farmer's Trail to pick up my camera

As I approached the farmer's trail, I could see that it had been resurfaced, not with tarmac, but with hardcore and gravel. It actually made the climb up a lot easier. I had my bike in Eco mode, and using about 15% assist. This means I still get a workout, it actually feels like I have both legs, so it wasn't long before I was halfway up the trail. I stopped halfway as I spotted two Alpacas in the field. I tried to coax them over, but they just gave me a funny look. I tried using my phone camera to take some pics, but as they were too far away the images were naff, way too blurry.

Lots of Bails in the fields

A little further up the Trail

I set off again and headed for No Place and then down to Beamish and the entrance to Beamish Museum. Here I took a couple of pics, before riding down the bank, past the Museums Farm and down towards Beamish Hall. Once near Beamish Hall, I turned to an off-road trail to my Right, which would take me into Beamish Woods. It is nice in this area, very pretty and quite quiet. I generally only come across the odd fellow cyclist or dog walkers.

Glenn Johnstone
At the entrance to Beamish Museum


Another stop for a few pictures on the way through the wood and at the pond, before setting off up the hill and the trail that would take me back onto the road that links up on the way to Sunnyside

Glenn Johnstone

Glenn Johnstone
Having a nightmare setting camera up

Glenn Johnstone
Clip In Damn You

Glenn Johnstone
Out the saddle


Glenn Johnstone
 

Arctic ONE
Arctic ONE Band

At the Pond

Me Bike
 

Again I used another trail after the road section I had been riding on and this took me towards Birkhead and eventually to Tanfield Railway. I then followed the railway line using the meandering trail to the side of the tracks.

Now at Sunnyside I stopped for a brief moment, trying to decide, should I head down the back of Watergate and visit Watergate Park, or cross over at Sunnyside and get on yet another farmer's trail which would lead me to Fell side Road, coming out at the Woodsman Arms. Decision made, another farmer's trail and Fell Side Road.



At the end of Fell side Road I turned Right and headed as it's going towards the Hobson, however turned off and tootled along going towards Tanfield Village. Once at Tanfield Village I rode up and through Sleepy Valley and at the cross roads, continued up into Tantobie. Some pretty good climbing there in that section. The only time I put my bike in Turbo mode was to get across the crossroads, as cars come pretty quick along there.

Once at Tantobie I took a little side road which led me down into Harperley. It's funny how things drop out of your head. I had been this way a few weeks back and as I rode through Harperley I then recalled where I had seen the caravan storage place. I knew I had seen one and was trying to describe it to one of my da friends, but just couldn't remember where I had seen it.

Harperley has changed so much, I have some fond memories of the park as a kid, hanging out with my friends.

Ooh another climb, up Harperley bank, again no cheating, my bike was left in Eco mode and I ground my way up the bank, coming out at The Ox Pub. I then rode towards Stanley and when I got to the Arch Traffic lights decided to venture down South Moor and just for fun and because I had a bit of energy go up the other side of South Moor and then Wilka's bank.

At the top of Wilka's I turned on to Wagtail Lane and had a nice little bimble along the road, towards Craghead. As I was riding, looking over at the fields, thoughts of Scotland pervaded my mind. They are never far away, these thoughts. I was imagining what it would be like to get to know a local area in Scotland and head out on adventures there. Then to return to my Scottish abode and relax in front of a log burning stove, and take in the picturesque view complete with a nearby loch. When it comes to Scotland I have such a vivid imagination, of what I would like to do, and how things would be.

I rode 18.5 miles today and considering I was in two mind whether to go out, I have to say I am pleased I did. On some occasions, I even switched the battery off on my bike, and this made me feel pretty good, knowing my fitness level is quite good. Even on the hills and banks, I didn't feel as if I was working all that hard, mind you I could hear my heart beat in my ears, so I must have been exerting myself somewhat.



Wednesday, 8 September 2021

Day 251 and a wee ride out.

 It's day 251 today. "Day 251 of what?", you may ask. Well of riding every day this year. Most of my riding has been done indoors on my turbo trainer, something that I just got into a habit of doing due to shielding during covid. I actually rode every day last year and this year decided to continue, however do it for a good cause, which is the Arctic ONE foundation. As I am no longer on social media I have not raised a great deal, but hey every little counts, and it has spurred me on to keep going on those days I just feel like lounging around.

If you would like to help me to support Arctic ONE that would be great

Virgin Money Giving Link

Oh! And for some reason I also decided to start doing crunch sit-ups and this has now become somewhat of a further challenge as each month I increase them by 50 each day. Last month I completed 11200 for the month, having added some extra ones when I was bored or felt particularly full of energy and this month I am already up to 3200, that is 400 per day.

I have now convinced myself I quite enjoy exercising, so came up with the bright idea of buying a gym ball. I opted for a 65 cm version. My thinking was, as I didn't have enough room in my bedroom for a weights bench, I could do some gym ball exercises in combination with my dumbbells. Wow! What was I thinking? Obviously I wasn't as the exercises are so hard to do as an above knee amputee.

I have been trying to do a variety of exercises which include crunch sit-ups, a chest press and triceps curls. I'm just pleased no one has seen me in my efforts as I'm wobbling all over the shop and swearing at this stupid leg, or lack of it depending on which way you look at it. It's just so hard to maintain my balance. I do have to say though I'm quite proud of myself and have persevered and finally feel I am improving. It's amazing just how introducing a gym ball into a workout routine can really make you feel muscles you had forgotten about, it's brilliant for core stability. Saying which, it didn't stop me falling off my bike today over at Kya Bogs Lol.

So back to today. I had a ride out with my buddy John, as he has been getting a new bike. It's an Orange Clockwork Evo 29'er and a nice bit of kit. We just played it by ear with no real direction in mind, however John kind of knows I love just tootling around Chapman's Wells, as well it's just so quiet and not many people there, so it was pretty inevitable we would end up there.

John and his new steed

I can spend hours alone over there on my bike, with my Mp3 playing, and just doing loops of the nature reserve. 

I decided to take my Silverback Synergy Fat Bike on today's outing and have to say how surprised I was at my overall fitness, the turbo trainer must be keeping me in some sort of shape. Durham Road is quite a steep bank and I "granny geared" up no worries.

When John and I got over to Langley View after riding up the Black Path at South Moor, we headed down as if going towards The Drift at Quakies, however turned off into the field behind the houses. 


I decided to take a few pics, and it was at this point John spotted the plastic guard on his cassette. "I hate the look of those things" he said, so set about trying to remove it. It turned out to be a right fanny on and in the end I had to whip out my trusty £1 utility tool and try sawing, cutting and pliering off the surround. For a quid that little tool has been spot on I even think it has a thing for removing stones out of horses hooves LoL.

 

 





 

 

 

 

 

 

 

 

 

 

 

Anyhoo we had a lovely ride out in the beautiful sunshine, it was well worth popping in  a days annual leave. 

I will leave you with more pics from today...




 



Setting up the Camera