Showing posts with label The Arctic ONE Foundation. Show all posts
Showing posts with label The Arctic ONE Foundation. Show all posts

Friday, 14 February 2025

First Post of 2025 - A Round up of Not Much At All

I am going to start my first post of 2025 by getting my twisting out of the way, then hopefully that way I can end on a more positive note, and not have you all thinking "Jeez this guy is a whiny git, and I have just wasted 'X' amount of time reading this shit".

  

Epiphone Dot Limited 2019 Aquamarine
New/2nd hand Guitar

So both my dad and myself took ill with this virus type thing that had been doing the rounds. I know the exact date I started feeling unwell, it was Saturday the 15th of December last year, yes that's right last year. To date we are both still suffering the affects either from the last bug or a new one as I write. I knew when I started feeling unwell because it was the first ride out I had on my new Santa Cruz e-bike, and I blogged about the adventure. Now I can't be certain, so to avoid being sued I'm using the word "Allegedly".The only place I was really at, which was in close contact with other people was when I went into Greggs for a bite to eat and to get a hot cuppa, so "Allegedly" I think I may have caught a bug from someone whilst visiting there. 

Following returning home I felt like I had a scratchy throat on the evening. Over the course of the next few days this got progressively worse and I eneded up feeling dreadfull. Come the Monday my poor dad had also come down with something. He would go on to spend the next 5 weeks sleeping downstairs as he was so unwell and weak, he couldn't get up off the small 2 seater couch that we have in what used to be our dining room, and is now my dad's computer room, or "shit tip" as I like to call it. Me personally I guess I am not much better, preferring to think as where ever I have my stuff, it is more like organised "Chaos", where as if you look at anywhere where my dad leaves a mark it is just "Fucking Chaos", with shit all the shop.

I am the type of bloke who some would say has a perfectonist trait, also known as a "Right pain in the arse". For instance if I get any tools I take great care to clean them and replace them back in there respective places after use. As a kid I can recall going out with my dad on "Jobs". My dad being a mechanic he would ask me to hand him say a 17mm spanner, or maybe some other specific sized socket. I would then have to go rummaging around in his tool box for the next 15 minutes or so, in search of the desired piece of equipment as everything was just piled in, one on top of another. I mean imagine you have a toolbox, okay, and then you just give it a good shake, maybe drop it a few times, and then open it to discover everything all mixed up, and "Hey Presto", you have an idea of how my dad stored his gear. Things haven't improved as both my dad and I have got older. I can tell where ever Ern sets up shop, as he is a lot like how his Father used to be and a hoarder of crap that "Might come in useful". Saying which I have to laugh as I have a terrible habit of keeping "Boxes". Like you know when you get something new? I'll say to my dad, "We had better keep the box". Depending on the size of the box, it will either go into our loft, or in some cases get shoved in the outside shed.

Anyhoo moving on, also after that first ride out on my new bike I discovered I had done something to my ankle. I only have one good leg so trying to keep off it whilst using my elbow crutches was impossible, so basically I was proper "Hobbled". My ankle, specifically my Achilles and into my heel, was proper hurting. I know I have an altered gait, due to my prosthetic limb, but now I was limping all over and could hardly walk. I tried my best to deal with the virus and this new stupid fucking pain in my ankle, but inevtitibly had to take more time off work.

I managed to get a practice nurse to come out and see my dad and whilst she was out she also gave me the once over and we were put on a course of antibiotics. Oh and I also manged to get an appointment to go and see a Physiotherapist pretty quickly. The guy I saw was spot on and gave me great advice along with some esxercises to do at home, to strengthen my painful Achillies. I was advised to keep off my bikes for a while.

So long story short, it is now February 14th a Friday as I write this. My dad and I are still unwell, with cold like symptoms and coughing. I mean I am up writing this, because I can't sleep. I have a cough, sore throat and the most awful feeling in my sinuses. It's like I want to try and clear them by sniffing then spitting the horrible mucus out, but its just stuck there.

Oh and I followed the physio's advice and hadn't been out on my bike for about 3 months. I went out for a short 3.8 mile ride, it would be about 2 weeks ago now, completing a local loop, which was pretty much on the flat, apart from the Black Path over at South Moor, and when I returned home, man my Achillies was killing me again. Infact it felt even worse than when I first did it. When ever I bend my ankle its making a "Ratcheting sound". It feels like the tendon is being dragged through the protective sheath. I have also noticed if I stand for any amount of time, like at work my heel becomes very painful. So I am now awaiting another referral, and I have to say I am feeling rather low in mood and stressed. How long this is going to take to get put right? It just feels ever since getting diagnosed with that ulcertaive colitis my body is dropping to bits. I have never expeienced as much joint pain and fatigue.

Something else that has me feeling stressed and really annoyed is the fact that I want to take part in Arctic ONE's "Tour of the Isle of Wight", which will be a sponsored bike ride. I am trying to take each day as it comes, and not feel like I have the Harbinger of dooms mindset. The ride isn't until later in the year, around September. It's just that I had been off my bike 3 months and one ride out and I am back to square "none". It's soooo! Frustrating. I don't want to be sitting around feeling sorry for myself. Since being able to take up cycling it has always been a great source of inspiration and a release of all the day to day crap. Now I am struggling I have somewhat lost my "Mojo". This means I am having to look at other things to try and keep me motivated for what I hope is the short term.

Come April I will turn 57 years of age. If it wasn't for all these niggles I reckon I would be in pretty good shape. I mean yeah I am a bit like an old building being held up by bits of scaffolding, but hey! I am still hanging in there.

Epiphone Dot Limited 2019 Aquamarine
Epiphone Dot Limited 2019 Aquamarine

Anyhoo I decided to treat myself to an early Birthday present. I am terrible for "Googling" especially when I am bored. This is when I tend to purchase stuff I don't really need, however convince myself I do "It will cheer me up". That and of course like in this case, and my recent purchase of a new guitar, I have this internal image of me becoming a better guitar player. Of course in reality this is most definitely not the case, as it's hard work and practice that will improve my skills, not a new guitar. I could just as easily try and improve by using any of my other 6 guitars. Never mind this particular guitar called out to me from a far, so I bought it. 

Epiphone Dot Limited 2019 Aquamarine
Epiphone Dot Limited 2019 Aquamarine


Epiphone Dot Limited 2019 Aquamarine
Epiphone Dot Limited 2019 Aquamarine

The first time I saw the guitar in question was when browsing for something completely different. There was an image of this funky looking guitar and I wasn't sure what model it was. I could see it had an Epiphone logo and that was about it. Upon searching I just popped in Epiphone and the colour of the guitar which was "Blue & Green". After sometime I discovered it was a Epiphone Dot, that was produced in a limited run, so I couldn't buy it "Brand new".

After researching the guitar I discovered it was a Epiphone Ltd Edition Dot Deluxe FM Aquamirine Semi Hollow - A stylish guitar built to the exact diemsions of a vintage 335 style semi hollow arch top.

Fortunately I saw there was one advertised as being in "Mint" condition on a music site called Reverb. I went over and had a gander at the ad, and the description of the guitar from the advert sounded like it was brand new, even though it was a 2019 model. I cheekily messaged the seller with an offer. I didn't want to come across as being a complete "Douche", so aked the seller, would they be happy knocking £25 quid off, which they very kindly agreed to do. Apparently my new guitar should be with me today, so something to look forward to. 

I am continuing to get weekly one hour lessons, and although I can see that I have progressed in my playing and knowledge, as with anything it just doesn't feel quick enough. I want to be able to just pick up my guitar and be able to play any song at will, without struggling for chord shapes or having difficulty with strumming patterns. I am still terrible with rhythm and I know I can't sing, but it would be nice to be able to at least try and get some words out as I attempt to play. I just can't concentrate on everything that is going on with the guitar and then sing along at the same time. At the moment it's beyond my concentration levels LoL. 

Oh and in other news, my time has not been completely wasted, as I am up to just under 80,000 words in my book. I just need to go over the final chapters and hopefully when I can get out on my bike get a decent photo taken, so I can use it for a front cover. I am planning on the cover being black & white and I think I have thought of a good title which ties in with the book and it's story. Publishing wise I think I am going to go down the self publishing route, however getting a company to do the leg work in the set up and distribution. All in I reckon it could cost me anywhere from £600 to £1000, which I know is a lot of money and I could potentially do it cheaper. My way of thinking is I know I probably won't recoup that kind of money in any sales, however for me just getting it out there, and done correctly will be a sense of achievement. Even if one person buys it and offers some positive feedback, saying it was funny, helpful, thoughtful or a good read, well I would be well happy.

Goodness knows when I will update my blog again. It just feels like life is on a stand still once again, with not much happening, and the things I would like to be doing are being put on hold...Ah well that is life I guess.


Friday, 13 December 2024

What a month - A camera up the rear and a New Bike Day.

The last few months, well I should rephrase that to most of this year, since May in fact I have not been feeling well at all. My diagnosis was confirmed last Saturday when I had to have another camera up me hoop.

This time I attended my appointment for a sigmoidoscopy. It was no less uncomfortable than my two previous colonoscopies, but hey the procedure needed to be done to try and get to the bottom of what is going on with me.

I have currently been placed on another 2 months of predisanone, steroids and at least when I am on these they help with my ongoing symptoms. Though I must hasten to add I still do not feel my usual self. I have been able to return to work on a phased return and this is a massive help for my mental health. There is nothing worse than being at home with loads of time on your hands, but feeling to ill to do stuff. It just gives you too much time to think of all the negative stuff and end up feeling sorry for yourself.

Anyhoo onto something more exciting and positive. As I have wrote in a previous blog post I had been waiting for a new Orbea bike to arrive in at Wheelbase, in Darlington. As I recall I placed an order for a Cannondale Mottera, then changed my mind and opted for an Orbea Rise M10.

Adam kept me informed about the delay in the delivery of the Orbea, however as the months passed by, no sign of the bike. This was down to Orbea and nothing to do with Wheelbase, something to do with the components I had asked to have on the bike I believe.

Eventually I decided to cancel the Orbea and was indeed going to put a new bike on hold, due to my ongoing health concerns. I then thought "No, you know what a new bike will inspire me to get out there". Did I need a new ride? Well Yes of course I did I am addicted to shiny new bikes. I have already got my eye on another one for if I am invited to take part in next years Artic ONE charity bike ride, around the Isle of Wight. I can't be seen cheating on an e-Bike now can I?

 

New Bike Day
New Bike Day

Getting back in touch with Adam at Wheelbase I mentioned I had seen a good deal on a Santa Cruz Heckler SL and could he possibly do a price match. Adam said to give him a day or so, and he contacted the distributors, getting back to me with the good news, a bike easy available and he could price match. Great I placed an order and following my bike coming into the shop one of the workshop team fitted a Ridewrap protection kit, as I had requested.

Wheelbase Darlington
Wheelbase Darlington

Wheelbase Darlington
Wheelbase Darlington

I'm over the moon as my bike also came with a Fox Transfer Kashima Dropper seat post, and I am sure it has a lot carbon Reserve wheel set. Adam finished off the bike with some little trick Bugtec trick bits. A Bugtec top cap and, stack spacers.

A great selection of bikes available
A great choice of bikes from various manufacturers 

Santa Cruz Heckler SL I preferred last year's colour
Santa Cruz Heckler SL

Santa Cruz Heckler SL
Santa Cruz Heckler SL

I am just on my way home now, with Ern. As my dad is driving us back I am typing up the very thing you are reading. A nice cup of tea when we get back and then I will fit a few parts to my new bike which includes  Rockgaurdz front and rear mudguards, plus a K-Edge adjustable stem mount bracket to hold the new Beeline Velo 2 I purchased.

K-Edge adjustable stem mount
K-Edge adjustable stem mount

I am looking forward to reviewing the Beeline Velo 2 as in communication with the guys who make the small device, they have been ever so friendly and helpful. Each of the back and forth messages made me feel like I wasn't just another customer. I like the fact that they listened to my feedback and where actually interested in my continued journey and cycling. So once I  get the chance to test out the new bike and give it a bit of an informal review from a non professional riders point of view I will also get around to reviewing the Beeline Velo 2. I am lexcited to seeing if the small Beeline will help with my atrocious sense of direction.

 

Beeline Velo 2
Looking forward to reviewing this little GPS and offering Beeline some feedback.

Ooh decided to pop down to Team Cycles to treat my bike to a Peaty's Fidlock bottle and mount. Got a chance to see a DJI Amflow in the shop. First one I have seen, looked canny. The rear triangle looked thinner than I thought, but overall a nice looking bike.


Peaty's Fidlock bottle
A Peaty's Fidlock  bottle

Thanks for reading. Best wishes to everyone for the coming holiday season, and a Happy New Year 2025.

Sunday, 24 November 2024

Waiting is the worst part

       As we approach the end of another year and I reflect back, I have to say this year has been, without sounding to depressing almost a complete fail. 

      Of course there have been some exciting and positive moments, like my involvement in all of the success of the film "Meet the Local Hero", and the very kind invitation to travel over to Spain from my friend Dragos, the director to spend time with him and his partner Ana, then being able to attend the film screening in Barcelona, at the Love & Hope International Film Festival. 

Dragos and myself during filming

Meet the Local Hero


      There has been the help and support of various generous people alongside the Arctic ONE Foundation, on my Go Fund me page in trying to help me raise enough funds to buy a new G3 Infinity Knee, so that I could continue riding

  
Arctic ONE - what an amazing foundation

G3 Infinity Knee
G3 Infinity Knee


      And there is the fact I have found trying to write a book quite intriguing, and have enjoyed the journey of reflection and putting my thoughts and memories down. There is still a lot of work to do to get it all finished, mostly to do with grammar and getting a front and back cover done, however the story is just about at a point where I am happy.

      And so to this year and why I consider it a fail. Well I decided to treat myself to a new ebike, way back in May of this year 2024. After doing some research I opted for a Cannondale Moterra SL. I contacted Wheelbase in Darlington and went down to put a deposit down and place my order. I knew with the bike being a new model it would take some time to arrive, however whilst waiting I got my eye on a different model bike, so I decided to change my mind, and opted for an Orbea Rise M10 LT. I custom specc'd the bike down at Wheelbase and then I waited, and waited, and waited some more. Finally after waiting over 6 months the bike had not arrived, and I was informed it wouldn't be here until possibly December or even later. Apparently there was a problem with getting components.

      Now at this point I must make it clear, Wheelbase had done everything they possibly could to get the bike to me, it has had nothing to do with their customer service. I spoke to another local bike shop lately and they stated they have had the exact same problems when it comes to delivery times from Orbea. The same thing actually happened when I was looking to buy my Orbea Gain, I just couldn't get a bike for love nor money at the time.

      Anyhoo just this week I cancelled the order for the Orbea Rise with Wheelbase. There are other reasons, other than the long wait. I currently have stuff going on that have me kind of all over the place. If you are a follower of my blog you may have read that I have been going through some health issues, which funnily enough started just after I ordered a new bike, oh and when my old Bartlett Tendon Knee started acting up and became pretty much un-useable. 

   

Orbea Rise M10 LT
Orbea Rise Cancelled - Took way too long to arrive

      Going back to this health thing, I originally thought I had just picked up a really bad bug from work, however after a prolongued period of illness I was to discover this was not the case. 

      It has hit me really hard as my intention was to save up for a new bike, then my knee fucked up so I started the GoFund Me, and then this whatever it is health problem started getting worse. Obviously best laid plans and all that have not gone as I thought. I think I must have been off work going on 6 or so months this year, with what had been described as Ulcerative Colitis by the Inflamatory Bowel Disease clinic.

    Things got a little better following the taking of some predisanone which are steroids, these allowed me to take the trip over to Spain and even do some riding, however upon my return home and gradually coming off the steroids I found I was feeling unwell again, which has meant more time off work and I cannot ride my bike. I just feel so unwell. Whatever is going on has me wiped out, and in so much pain, alongside lots of stress.

      Having been back to the IBD clinic and now been put back on steroids alongside another medication, Salofalk Granules I am now waiting more investigations, this is to be another camera up my hoop, something called a Flexible Sigmoidoscopy and a MRE, which is similar to a MRI, however is apparently better for observing soft tissue.

      My IBD nurse has been wonderful in her support, she says there is a Big question mark over my diagnosis, and I am a trickey customer, due to my past history with the Non Hodgkins Lymphoma and having treatment for that. Now that I am needing more tests  I am obviously concerned, however trying to stay positive.      

      I just feel my whole life is back in limbo again, waiting for a definitive diagnosis, and then to see what will happen. My health has to come first as without it I can't do jack. I am stressed about work, and I know I will have the Department of Work and Pensions on my case and the awful people over at Universal Credit. I was sanctioned £800 the first week I was forced onto this new benefit system, and went from disabled tax credits which I used to receive from HMRC without problems.

       Now recently I have been sanctioned by Universal Credit, 2 months in a row since being on the sick, and I have been informed I owe £900 quid back. The people at Universal Credit took great delight in telling me there is no such things as "disabled tax credits", basically you are treat like a benefit scrounger. I hate it on the rare occassion when I do have to attend the Job Centre, as you have to face the demeaning glare of the so called advisors, who look at you like you are pure scum. I don't get a great deal a month from the government, it's just supposed to be a little help to bump up my wage, to meet the national standard. I have had to reduce my hours at work, as I have been struggling for sometime, so I am now down to 24 hours per week, well when I feel well enough to even go.

      Man this all sounds like doom and gloom and I apologise if you are reading this and thinking " Wow I could do without reading all this negativity", however my blog has always been about telling it how it is. Life for a lot of people isn't like in the movies, or like on social media, where everyone is trying to portray this amazing, yet fake lifestyle. Yes I have had a bit of a whine in my relaying of events, or is it more of just getting my thoughts out there ?

      You see I find writing stuff down helps with my thought process. I know I have faced serious health concerns in the past, so although I am stressed to fuck at times, due to the unknown, I also feel pretty well equipped to deal with what is to come. The best bit of advice I can give anyone, I guess is to talk to someone and try not to keep things bottled up. Although it may feel like moaning and it can get tedious as your whole life appears to revolve around whatever problem you have, talking to someone you trust can help relieve a great deal of pressure.

Of course I also have that internal dark side to me, and if you know anything about me you will know I love quotes. This one is by Lou Holtz who used to be an American football player, coach and analyst, and it goes like this...

" Never tell your problems to anyone... Eighty Percent don't care and the other twenty percent are gald you have them"

      I just keep telling myself take one day at a time and live in the moment, the past is the past and the future is not here yet so it is no good getting all wound up, of course its difficult, however I am a lot better at stopping my over active imagination and telling my inner voice to do one, when it starts with all its negative questions and scenarios. At the end of the day this is just life, and part of my journey.

     I am going to focus on keep going with my goal of getting a new G3 Infinity Knee, and looking ahead to getting a new bike so that I can follow my passion of being out in nature on some beautiful trail or another. It kind of reminds me of way back in 2007 when I knew I was going to have my leg amputated. I bought a new bike, way before my surgery and that was the inspiration to overcome and move forward. 

     Future inspiration a picture for now...

Santa Cruz Heckler SL CC
Santa Cruz Heckler SL

For now I will probably wait a little while for a more positive diagnosis, then I will know exactly what I am dealing with, and I can figure out a way forward. Hey its just another challenge Right?

Wednesday, 16 October 2024

Arctic ONE Forward Motion

Hi

Many of you may not have heard of The Arctic ONE Foundation I am not sure how I became aquainted with the charity to be honest, whether they discovered me or I discovered them. Thinking back I may have been introduced to Matt Kirby and Bex Stubbings, two of the leading representitives of Arctic ONE when I was being supported by the lovely people over at what was then Pace Rehabilitation. This was way back in 2014. 

Anyhoo from my point of view with dealings with the lovely people over at Arctic ONE what I like about the foundation is their transparency, their passion and how they treat everyone equally, striving to offer support where they can. Arctic ONE makes you feel like part of a big family, and friendships are formed.

  

The Arctic ONE Foundation

A little about what The Arctic ONE Foundation is all about:

The Arctic ONE Foundation provides opportunities for people to get active and enjoy sport.

We believe that Everyone should have the chance to be active. We set up Arctic One to provide opportunities to people with disabilities to get involved in sport through our grants system, our events and training days and through working with other charities to provide resources and raise awareness