Sunday, 15 December 2024

First ride out on the new Santa Crux Heckler SL

Man, it's stupid O'Clock in the morning—4:53 a.m., to be exact. I've had a restless night. I'm not sure whether it's these prednisone steroids I'm taking, which increase cortisol levels, or maybe I'm excited about going out for a ride on my new bike after not having ridden in a while.

Getting out of bed with a rather frustrated sigh, I decided to just leave my bedtime shorts and t-shirt on. Getting ready into my bike gear was a bit pointless, as I wasn't meeting my friends John and Peter until 8:00 am. I popped my everyday prosthetic leg on and was set for a bit of breakfast.

As I came out of my bedroom and switched the landing light on, I could see my bikes at the bottom of the stairs. My Orbea Gain and my new shiny Santa Cruz. I then had this thought, and memories came flooding back of a time when I was little and those Christmases when I was very fortunate to receive a bike.

Santa Cruz Heckler SL & Orbea Gain
Reminded me of Christmas as a kid, with a shiny new bike

My Dad doesn't particularly enjoy Christmas; in fact, we have become accustomed to not celebratingas. She would take great joy in putting up the decorations and wrapping various presents. There is not long to go now, so maybe instead of following Ern's "Baa Humbug" attitude, I should take a page out of my Mam' it. My Mam used to make Christmas book and make more of an effort.

I always ask Ern, "What would you like for Christmas?" to only get the reply,"There's nowt I want or need". Ern's so hard to buy for.

Anyway, heading downstairs, I went into the kitchen and opened the cupboard to retrieve my concoction of various medications. I'm down to five prednisone, an Ad-cal, a sachet of Salofalk granules, an Atenalol for my high blood pressure, and an Iron tablet. I always take the Salofalk granules first, as I find them difficult to swallow.

First, I have to pour the tablets into my mouth, and then I have to try to wash them down with a drink. You are not supposed to chew the tiny bead-like granules. They always get stuck between my teeth, and I'm left wandering around trying to dislodge them with my tongue. The rest of the tablets I pop in my hand and take in one swift swallow along with a drink.

Medications
All these different medications I hate taking.

Following the taking of my meds, I decided to make some breakfast. I'm not usually a big eater. However as I have been on the steroids, boy, I just can't stop eating. It's weird as although most days I tend to have an upset tummy, and sometimes feel lethargic and nauseous, I still have this urge to eat. I am now at my heaviest, being over 14 stone, according to our scales. Obviously, I can lose weight pretty quickly. I just take my prosthetic leg off, Lol.

"Mmmmmmm, what to have? Upon checking out the fridge, "Damn it, no bacon", plus the eggs we had in were out of date. "Sausage sandwich it is then". Popping three sausages into the Ninja air fryer. Not long after the sausages were done and I placed them in a bun with tomato sauce, they were gone. A nice cup of tea, and I felt relatively satisfied, well probably until about an hour's time.

Sausage Sandwich
Mmmmmm Sausages

Yesterday, I did well in preparing everything for today's adventure. Usually, you can guarantee that whenever I'm going out for a ride, I can't find something I need. The only thing I had to do this morning was go for a quick ride around the block to check the alignment of my cycling socket, knee and foot.

Yesterday, I set up the Santa Cruz Heckler's suspension, following a guide on Santa Cruz's website and a YouTube video. I also made sure everything was charged, including the bike, the SRAM AXS battery, the Beeline GPS, and, of course, my phone. Oh, and I also completed the warranty on the bike and the Reserve carbon wheelset, which I am chuffed to bits with. The model bike I ordered would have normally arrived with Reserve Alloy wheels.

That first part of my blog I wrote whilst waiting to get ready and go to meet John and Peter. The next part I will complete after I get back.

Okay, I am back. Thoroughly kanckered, aching and sore. My good leg, which is my Left, well, the cleat in my shoe must have been positioned slightly wrong, as man, after 37 miles, my achilies is killing me. I also have a blister on my butt from where my socket has been rubbing.

Bike-wise, the Santa Cruz Heckler rides great. I opted for a size Large, I am just a tad over 6 feet tall. My Specialized Turbo Levo, which always felt massive, was an XL. The Santa Cruz's suspension feels stiffer than the Specialized's, too, however not uncomfortable. I did notice a huge difference in power, going from a full-power bike to a mid-power bike. The Santa Cruz Heckler has a "Fauza motor", which only pushes out 60 nm max, whilst my old Specialized would fly along in Turbo mode, pushing out 85 nm from its Brose motor. That said, I rarely used the Turbo mode on my old Specialized, and I kind of knew what to expect with the mid-power bike. You see, my intention is to get fit once again, and I don't want to be relying on battery power alone. 

Santa Cruz Heckler SL Gloss Magenta
Santa Cruz Heckler SL Gloss Magenta

I really like the Fauza "ring controller". This is the switch to turn the bike on and off and operate the various modes. I have heard a lot of peple say it is "plasticky", possibly, but I still like the way it works and feels. I know that Santa Cruz, with itts Fauza setup, doesn't have an all singing all, dancing display on the bike, but at no time did I not know waht mode I was in. The only thing I was disappointed with, and this may have been my fault, was that the Fauza app did not record my ride. I have yet to have a good look at the app, it doesn't exactly look like rocket science, and I like that. Sometimes you find on these apps there is far too much information and stuff going on.

The Beeline Velo 2, on the other hand, worked very well. I love this little gadget for its simplicity and ease of use. I intend to write a review, so I will only go into a little detail here.

Beeline Velo 2 mounted with a K-Edge Adjustable Stem Mount
Beeline Velo 2 mounted with a K-Edge Adjustable Stem Mount

On today's ride I tried to keep the bike in the Breeze and River modes, only using the Rocket mode on some of the hills and a little when I was coming to the end of the ride and approaching home. After 37 miles and being out almost six and a half hours on my return home, the bikes battery only had 3% left. I'm going to try and play around with the app and see if I can get some better range. However if can't, I would love to see a range extender being developed or the bigger 480-watt battery, which  I have heard may be coming out soon.

So, although todays adventure was a bit tougher than expected, I really enjoyed getting back in the saddle. My fitness has really dropped off, and it doesn't help that I am on all this medication. I am looking forward to my next outing on my bike.

Getting back to today's ride with the boys. I rode from my house up the back of Durham Road to John's. I experimented with the River and Rocket modes. Upon reaching John's, I have to admit, man, I was out of breath. John and I didn't have to wait long for Peter to arrive, and then we set off. We had only covered a few hundred meters when I realised my prosthetic foot had turned and was in a horrible position. I am sure I had tightened up the bolt this morning. Anyhoo, after a quick adjustment and a tightening of the bolt, we were off again. Mind you, it was only to the top of Wear Road, where John had to stop to adjust his wonky handlebars. He hadn't aligned them properly after tightening his headset the other day.

Soon, we were heading along by the bypass towards Oxhill, heading towards the Morrison Busty, to then go down Lanchester Bank and get onto the Lanchester Valley cycle track. The sun was low in the sky heading down the track, and even though I was wearing my sunglasses, it was very difficult to see. 

Sun through the Trees
The sun became a lot brighter as we rode down the Lanchester Valley

On the Lanchester Valley Cycle Track
On the Lanchester Valley Cycle Track

On the Lanchester Valley Cycle Track
John on his new bike on the Lanchester Valley Track

A good way down the track, we tuned left and cut through the farmer's property to head up the bank towards Bear Park. As Peter pedalled hard to gain some momentum for the upcoming hill, his chain suddenly snapped. I had a chain tool in my tool kit, so attempted to take the damaged link out and repair the chain; however on inspection, the chain was worn in other areas. So we had to resort to a plan B. I asked John to have a quick Google for local bike shops, and it was a choice of either Evans, which was quite some way away near the Arnison Centre or Infinity Cycles down by Meadowfield.    

Peter and his snapped chain
Peter and his snapped chain

We chose Infinity Cycles and proceeded to try to follow Google Maps. The Google Maps lady wasn't exactly helpful as we rode, or rallied in Peters case, down the wrong road for about a mile before having to turn around and come back. John gave Peter a helping hand, pushing him whilst he rode in Turbo mode on his bike, and I went off searching for Infinity Cycles. I was way off finding the bike shop, then got a call from John saying, "Hey we have found it; come back past the way you went". So I turned around and followed Johns's instructions. How the hell we had missed the bike shop, I don't know, I mean, there is this giant sign at the roadside, plus I have been to the shop on numerous occasions with my dad.

Infinity Cycles
Infinity Cycles
Getting a new chain fitted at Infinity Cycles
Getting a new chain fitted at Infinity Cycles

It didn't take long for one of the mechanics to fix Peter's bike, and we were soon on our way with the goal of getting to Finchale Priory. Heading back up towards Nevilles Cross, then down into Durham City Centre, we rode to Greggs. I had been hankering for a nice cup of tea and something to eat, as my sausage sandwich had been ages ago. One of us stopped outside with the bikes at all times whilst the others went into Greggs. I got a lovely large steaming cup of tea, a large chicken sandwich and some Large Chocolate chip Cookies. The sandwich, tea, and cookie went down as a treat.

Peter and John outside Greggs
Peter and John outside Greggs

Peter and Glenn
Peter and me I was so looking forward to that cup of tea.

I then attempted to use Google Maps to find the way to Finchale Abbey. Again, we rode through Durham City Centre and headed towards Milburngate and then up the street as if going to the old Durham Ice Rink. Once back over the river using the footbridge the route was straightforward all the way to the Abbey. Peter was a little in infront of the road and had stopped to have a tab, and I got my eye on some beautiful ravens in the field, so I began talking to them, hoping they may come closer. I even offered them some of my chocolate cookies, but they didn't appear interested. I love ravens and crows and have been considering getting a tattoo. I can relate to the symbolism of a Raven.

Ravens in a Field
Ravens in a field

A short ride down another road and onto a trail soon brought us to the Abbey. John and Peter had arrived just before me, so they were already looking around the ruins. I whipped my phone out and took a few shots.

Finchale Abbey
Finchale Abbey as you approach it from the car park.

Finchale Abbey
Finchale Abbey

Finchale Abbey
Finchale Abbey

Finchale Abbey
Finchale Abbey

Naughty Boys
Naughty Boys at Fichaler Abbey

We then headed across the river on the narrow footbridge. As I was going over, there was a man with, I take it, his young son. I moved over to let them pass, and the man thanked me. I jested that in days gone by, we probably would have had a duel on the bridge and he laughed and then gave me a fist bump, lol.

Looking acroos toward Finchale Abbey from the bridge
Looking across toward Fichale Abbey from the bridge

More pics are at the end of the bridge, and then Joh said that he really must put a spurt on, as his lass was playing hell about him being  out for so long, as they were supposed to be going out to see some Christmas lights. I told John to just crack on with Peter, as there was no way I could keep up, especially if he was riding his new bike in Turbo mode. So John and Peter left me down by the river as I took more photos'

Looking across toward Fichale Abbey from the bridge
Looking across toward Fichale Abbey from the bridge

Finchale Abbey
My bike waiting patiently at the end of the bridge.

The ride along the river through Cocken Woods with all the leaves was beautiful. Soon, though I had to cut up through the wood on this somewhat steep and muddy incline. Rocket mode required for this section. I was impressed with how well the Santa Cruz rode up the bank, mind you, by the time I got to the very top, I thought I was going to cough up a lung.As I came out onto the road, I had to rely on Google Maps once again, and it took me going in the wrong direction some 400 to 500 meters to figure out I was going in the wrong direction.The Google lady kept sayijg "Make a U turn". U-turn completed and now going the correct way, I headed down Cocken Lane.

As I rode down the road, I saw John and Peter standing at the side of the road. John was on his phone, probably getting bollocked off his lass. I shouted, "Are you lost?" and just continued on, heading as directed towards Great Lumley. Not long after, John and Peter caught up, and we headed through the parkat Chester Le Street near the riverside, and this took us eventually to the bottom of Chester Le Street itself. Going from Chester Le Street, we rode up past the Police station and headed to the junction where all the traffic lights and the roundabout is. John suggested just going up by the dual carriageway on the path; however, I told him I was just going to ride down towards Birtley and then come up the C2C, so this is the way we went. Once on the C2C, John must have popped his bike into turbo mode, as Peter and I didn't see him again. Peter, who is fit as a lop, rode with me for a little while however his pace was a lot quicker than mine. I couldn't pop my bike into Rocket mode as I was down to one light, indicating my battery was just about out of juice.

When I eventually got to Beamish, I cut up by No Place and the Beamish Mary Inn, taking the off-road trail that would lead me to the farmer's trail just. At the bottom of there is the Famous Ladies' estate, and then I would be almost home. My battery was just about dead by now, and the trail was challenging to ride heading up the hill. All the rain lately had caused the trail to wash out, and there were huge gouges in the ground, with big stepped areas. I was thoroughly exhausted, so I pushed my bike up the hill until I got on the flat bit, then rallied down the other side. 

I was so tired that I struggled to hold and bend my Bartlett Tendon Knee with all of its resistance, so I couldn't manage to get clipped in straight away. I had a few choice words, then had another attempt and heard my cleat pop into the pedal, so I mounted my bike and then enjoyed the ride down the hill.

Reaching the Famous Ladies estate, I made my way through the houses, and I was home. I went to open the back gate and realised my dad hadn't been out all day, and his car was parked next to the fence, so there was no room to get my bike past. So I fumbled again with my prosthetic foot and rode around to the front of our house. I am ashamed to say I was so tired I couldn't be arsed to wash my new bike, so I pushed her into the house even though she was all clarty.

I was desperate for another cuppa, and made a chicken sandwich, and once I had finished, that had the last cookie I had bought, plus a bar of Turkish Delight. I got my bike gear off, popped it in the wash basket, and went upstairs to have a well-earned soak in the bath. Jeez, that sore bit on my arse didn't half smart. Once out of the bath, I decided to connect my Google Pixel 9 to my Mac so that I could upload the files and edit them for my blog. Dear me, I must have been on an hour trying to figure out why my phone wouldn't speak to the Mac. I hate technology. It rarely makes life simpler. Anyhoo, I figured it out, and that's about all folks.

Ooh just a little side note from today, Sunday. When I got up this morning I could hardly walk on my good leg. I'm not sure what I have done to my Achilles but it's proper painful. I have had to hobble around all day. It's not good when what is supposed to be my good leg is acting up and my other leg is a prosthgetic one. Hopefully it will improve over the next few days. I am going to investigate my shoes and the positioning of the cleats. The only thing I have changed is that I have placed new TIME pedals on my bike. They are TIME Speciale 10's. However I have used the same TIME designs for years and never experienced any sort of issues like I am having at the moment with my achilles. I can't figure it out. The centre axis has to be exactly the same and the cleat mech is the same, its just the pedal bodies that are slightly bigger, with small studs in place for extra grip. Hopefully I will be ok by Thursday as I would like to head out for another ride when I am off.

Friday, 13 December 2024

What a month - A camera up the rear and a New Bike Day.

The last few months, well I should rephrase that to most of this year, since May in fact I have not been feeling well at all. My diagnosis was confirmed last Saturday when I had to have another camera up me hoop.

This time I attended my appointment for a sigmoidoscopy. It was no less uncomfortable than my two previous colonoscopies, but hey the procedure needed to be done to try and get to the bottom of what is going on with me.

I have currently been placed on another 2 months of predisanone, steroids and at least when I am on these they help with my ongoing symptoms. Though I must hasten to add I still do not feel my usual self. I have been able to return to work on a phased return and this is a massive help for my mental health. There is nothing worse than being at home with loads of time on your hands, but feeling to ill to do stuff. It just gives you too much time to think of all the negative stuff and end up feeling sorry for yourself.

Anyhoo onto something more exciting and positive. As I have wrote in a previous blog post I had been waiting for a new Orbea bike to arrive in at Wheelbase, in Darlington. As I recall I placed an order for a Cannondale Mottera, then changed my mind and opted for an Orbea Rise M10.

Adam kept me informed about the delay in the delivery of the Orbea, however as the months passed by, no sign of the bike. This was down to Orbea and nothing to do with Wheelbase, something to do with the components I had asked to have on the bike I believe.

Eventually I decided to cancel the Orbea and was indeed going to put a new bike on hold, due to my ongoing health concerns. I then thought "No, you know what a new bike will inspire me to get out there". Did I need a new ride? Well Yes of course I did I am addicted to shiny new bikes. I have already got my eye on another one for if I am invited to take part in next years Artic ONE charity bike ride, around the Isle of Wight. I can't be seen cheating on an e-Bike now can I?

 

New Bike Day
New Bike Day

Getting back in touch with Adam at Wheelbase I mentioned I had seen a good deal on a Santa Cruz Heckler SL and could he possibly do a price match. Adam said to give him a day or so, and he contacted the distributors, getting back to me with the good news, a bike easy available and he could price match. Great I placed an order and following my bike coming into the shop one of the workshop team fitted a Ridewrap protection kit, as I had requested.

Wheelbase Darlington
Wheelbase Darlington

Wheelbase Darlington
Wheelbase Darlington

I'm over the moon as my bike also came with a Fox Transfer Kashima Dropper seat post, and I am sure it has a lot carbon Reserve wheel set. Adam finished off the bike with some little trick Bugtec trick bits. A Bugtec top cap and, stack spacers.

A great selection of bikes available
A great choice of bikes from various manufacturers 

Santa Cruz Heckler SL I preferred last year's colour
Santa Cruz Heckler SL

Santa Cruz Heckler SL
Santa Cruz Heckler SL

I am just on my way home now, with Ern. As my dad is driving us back I am typing up the very thing you are reading. A nice cup of tea when we get back and then I will fit a few parts to my new bike which includes  Rockgaurdz front and rear mudguards, plus a K-Edge adjustable stem mount bracket to hold the new Beeline Velo 2 I purchased.

K-Edge adjustable stem mount
K-Edge adjustable stem mount

I am looking forward to reviewing the Beeline Velo 2 as in communication with the guys who make the small device, they have been ever so friendly and helpful. Each of the back and forth messages made me feel like I wasn't just another customer. I like the fact that they listened to my feedback and where actually interested in my continued journey and cycling. So once I  get the chance to test out the new bike and give it a bit of an informal review from a non professional riders point of view I will also get around to reviewing the Beeline Velo 2. I am lexcited to seeing if the small Beeline will help with my atrocious sense of direction.

 

Beeline Velo 2
Looking forward to reviewing this little GPS and offering Beeline some feedback.

Ooh decided to pop down to Team Cycles to treat my bike to a Peaty's Fidlock bottle and mount. Got a chance to see a DJI Amflow in the shop. First one I have seen, looked canny. The rear triangle looked thinner than I thought, but overall a nice looking bike.


Peaty's Fidlock bottle
A Peaty's Fidlock  bottle

Thanks for reading. Best wishes to everyone for the coming holiday season, and a Happy New Year 2025.

Abarth 124 Spider - Hardrace Strut Brace + other mods I forgot about.

It's probably a good few months now when I did a little research into what strut brace I could purchase to fit my wee Abarth 124 Spider. There were a few on the market, however I really wanted a blue coloured one to tie in with my car, call it OCD.

Another reason for a replacement strut brace was for more practical reasons. You see as I am running Yellow Speed Racing coil overs, with the original brace I could not adjust the suspension, through the top mounts. without removing the factory strut brace. The original brace completely covers the top of the struts, so has to be removed for any adjustments to be made, which means it is a right faff.

Hardrace Strut Brace
Hardrace strut brace,

Now as many of you will know the Abarth 124 shares the same platform as the Mazda MX5 ND, so when I couldn't find a suitable Abarth version I started looking at braces that were made for the Mazda.

I happened to come across a blue Hardrace Strut brace, so decided to go ahead and purchase one. 

When the strut brace arrived, it was well packaged and the box contained all the required mounting plates and fasteners.

Hardrace Strut brace
Can now get access to top of coil over struts

Both Ern and myself got cracking with the job in hand and soon the old brace was removed, and replaced with the new Hardrace version. It was a very easy job, and not only does the new brace look a lot better astheticaly, but I think I have noticed improved stiffness when driving. So I am very happy with my new mod.

Oh and I also forgot to mention whilst we were on, around about the same time I had a Sports CAT fitted to my car, Well the garage that fitted it were unable to pop the heat shield back on, as there were no mountings on the new CAT. After driving my car I noticed it smelled and felt very hot. My da and I ended up remobing the CAT in our back yard. It was easy yo get off, however after wrapping the CAT with Funk some Lava Wrap, what a nightmare getting the bloody thing back on. It was one single bolt in a suport bracket that we had the issue with.

   
The Ern
The Ern working on my wee Abarth 124 Spider

Follwing putting the CAT back on we fitted another of my new mods a PTP Lava Turbo blanket. Now with both the wrap on the CAT and the turbo blanket my wee Abarth is sorted. 
  
PTP Turbo Blaket for Abarth 124 Spider.
PTP Turbo Blaket for Abarth 124 Spider.
Oh and finally I ordered an eMotion2+ Personal OBD Tuner from Celtic Tuning. I attached the tuner to my car, downloaded the file to the box, and then uploaded to my PC and sent the file off to the eMotion2+ people. Within a short space of time I had a new modified file and was able to pop that on the tuner box and reupload to my car.

   
eMotion+
eMotion2+ OBD tuning Box


The whole process was pretty easy anI didn't encounter any issues. The eMotion2+ guys were very friendly and helpful. Now that the remapped file is on my car I can definitely tell a difference. I am not sure how much extra horses it has given me. My car now along with the Sports CAT and the new remap, where I get some small pops and bangs with the valves open on my Ragazzon exhaust sounds absolutely epic.
As a 56 year old old fart I now love driving my car in "Hooligan Mode" and it makes me feel relatively young again, especially in the fine weather with the top down.

Sunday, 24 November 2024

Waiting is the worst part

       As we approach the end of another year and I reflect back, I have to say this year has been, without sounding to depressing almost a complete fail. 

      Of course there have been some exciting and positive moments, like my involvement in all of the success of the film "Meet the Local Hero", and the very kind invitation to travel over to Spain from my friend Dragos, the director to spend time with him and his partner Ana, then being able to attend the film screening in Barcelona, at the Love & Hope International Film Festival. 

Dragos and myself during filming

Meet the Local Hero


      There has been the help and support of various generous people alongside the Arctic ONE Foundation, on my Go Fund me page in trying to help me raise enough funds to buy a new G3 Infinity Knee, so that I could continue riding

  
Arctic ONE - what an amazing foundation

G3 Infinity Knee
G3 Infinity Knee


      And there is the fact I have found trying to write a book quite intriguing, and have enjoyed the journey of reflection and putting my thoughts and memories down. There is still a lot of work to do to get it all finished, mostly to do with grammar and getting a front and back cover done, however the story is just about at a point where I am happy.

      And so to this year and why I consider it a fail. Well I decided to treat myself to a new ebike, way back in May of this year 2024. After doing some research I opted for a Cannondale Moterra SL. I contacted Wheelbase in Darlington and went down to put a deposit down and place my order. I knew with the bike being a new model it would take some time to arrive, however whilst waiting I got my eye on a different model bike, so I decided to change my mind, and opted for an Orbea Rise M10 LT. I custom specc'd the bike down at Wheelbase and then I waited, and waited, and waited some more. Finally after waiting over 6 months the bike had not arrived, and I was informed it wouldn't be here until possibly December or even later. Apparently there was a problem with getting components.

      Now at this point I must make it clear, Wheelbase had done everything they possibly could to get the bike to me, it has had nothing to do with their customer service. I spoke to another local bike shop lately and they stated they have had the exact same problems when it comes to delivery times from Orbea. The same thing actually happened when I was looking to buy my Orbea Gain, I just couldn't get a bike for love nor money at the time.

      Anyhoo just this week I cancelled the order for the Orbea Rise with Wheelbase. There are other reasons, other than the long wait. I currently have stuff going on that have me kind of all over the place. If you are a follower of my blog you may have read that I have been going through some health issues, which funnily enough started just after I ordered a new bike, oh and when my old Bartlett Tendon Knee started acting up and became pretty much un-useable. 

   

Orbea Rise M10 LT
Orbea Rise Cancelled - Took way too long to arrive

      Going back to this health thing, I originally thought I had just picked up a really bad bug from work, however after a prolongued period of illness I was to discover this was not the case. 

      It has hit me really hard as my intention was to save up for a new bike, then my knee fucked up so I started the GoFund Me, and then this whatever it is health problem started getting worse. Obviously best laid plans and all that have not gone as I thought. I think I must have been off work going on 6 or so months this year, with what had been described as Ulcerative Colitis by the Inflamatory Bowel Disease clinic.

    Things got a little better following the taking of some predisanone which are steroids, these allowed me to take the trip over to Spain and even do some riding, however upon my return home and gradually coming off the steroids I found I was feeling unwell again, which has meant more time off work and I cannot ride my bike. I just feel so unwell. Whatever is going on has me wiped out, and in so much pain, alongside lots of stress.

      Having been back to the IBD clinic and now been put back on steroids alongside another medication, Salofalk Granules I am now waiting more investigations, this is to be another camera up my hoop, something called a Flexible Sigmoidoscopy and a MRE, which is similar to a MRI, however is apparently better for observing soft tissue.

      My IBD nurse has been wonderful in her support, she says there is a Big question mark over my diagnosis, and I am a trickey customer, due to my past history with the Non Hodgkins Lymphoma and having treatment for that. Now that I am needing more tests  I am obviously concerned, however trying to stay positive.      

      I just feel my whole life is back in limbo again, waiting for a definitive diagnosis, and then to see what will happen. My health has to come first as without it I can't do jack. I am stressed about work, and I know I will have the Department of Work and Pensions on my case and the awful people over at Universal Credit. I was sanctioned £800 the first week I was forced onto this new benefit system, and went from disabled tax credits which I used to receive from HMRC without problems.

       Now recently I have been sanctioned by Universal Credit, 2 months in a row since being on the sick, and I have been informed I owe £900 quid back. The people at Universal Credit took great delight in telling me there is no such things as "disabled tax credits", basically you are treat like a benefit scrounger. I hate it on the rare occassion when I do have to attend the Job Centre, as you have to face the demeaning glare of the so called advisors, who look at you like you are pure scum. I don't get a great deal a month from the government, it's just supposed to be a little help to bump up my wage, to meet the national standard. I have had to reduce my hours at work, as I have been struggling for sometime, so I am now down to 24 hours per week, well when I feel well enough to even go.

      Man this all sounds like doom and gloom and I apologise if you are reading this and thinking " Wow I could do without reading all this negativity", however my blog has always been about telling it how it is. Life for a lot of people isn't like in the movies, or like on social media, where everyone is trying to portray this amazing, yet fake lifestyle. Yes I have had a bit of a whine in my relaying of events, or is it more of just getting my thoughts out there ?

      You see I find writing stuff down helps with my thought process. I know I have faced serious health concerns in the past, so although I am stressed to fuck at times, due to the unknown, I also feel pretty well equipped to deal with what is to come. The best bit of advice I can give anyone, I guess is to talk to someone and try not to keep things bottled up. Although it may feel like moaning and it can get tedious as your whole life appears to revolve around whatever problem you have, talking to someone you trust can help relieve a great deal of pressure.

Of course I also have that internal dark side to me, and if you know anything about me you will know I love quotes. This one is by Lou Holtz who used to be an American football player, coach and analyst, and it goes like this...

" Never tell your problems to anyone... Eighty Percent don't care and the other twenty percent are gald you have them"

      I just keep telling myself take one day at a time and live in the moment, the past is the past and the future is not here yet so it is no good getting all wound up, of course its difficult, however I am a lot better at stopping my over active imagination and telling my inner voice to do one, when it starts with all its negative questions and scenarios. At the end of the day this is just life, and part of my journey.

     I am going to focus on keep going with my goal of getting a new G3 Infinity Knee, and looking ahead to getting a new bike so that I can follow my passion of being out in nature on some beautiful trail or another. It kind of reminds me of way back in 2007 when I knew I was going to have my leg amputated. I bought a new bike, way before my surgery and that was the inspiration to overcome and move forward. 

     Future inspiration a picture for now...

Santa Cruz Heckler SL CC
Santa Cruz Heckler SL

For now I will probably wait a little while for a more positive diagnosis, then I will know exactly what I am dealing with, and I can figure out a way forward. Hey its just another challenge Right?

Friday, 15 November 2024

Why I would never buy another Abarth

 As the title to this post states "Why I would never buy another Abarth!"

I purchased my Abarth 124 Spider from Motorpoint in Birtley sometime around August of last year 2023, after trading in my Abarth 595 Competzione. As with all my other cars that I have owned, there has been no expense spared in either servicing or in modifying my car. I always use top end products, for washing and cleaning, and it was upon cleaning my car some 7 months ago, and I will now explain how the 7 months is relevant. 

      You see it was a hot day and after washing my car and going on to dry her  around the boot area, I obseerved the rubber boot seal appeared loose. As I took my duster to mop up any residual water the seal moved and I noticed what appeared to be signs of rust under the seal. Upon lifting the seal up, sure enough the paint was blistered.

Following the drying of my car and giving it a good polish I decided to pop to a local garage, and the friendly chap took a look at the area and informed "You should get intouch with the main dealer, as this should come under warranty". He advised I check my service book and look under the warranty section. So when I got home that is what I did. It clearly stated the car is only warrantied for 36 months against manufacturing defects of the paintwork, this was on page 9. However when I turned the page and looked at page 10 it stated that the car was covered under warranty for "Perforating Rust" and this is for 8 years. Now my car is a 2019 so if we go to 2024 that means it is 5 years old, so I thought " Get in I am covered". I mean the area the car was rusting could not have been caused by stone chips, or other accidental damage. The paint is blistering from what looks like to me the inside to the outside. It is as if the car has had a spot weld on the panel and not enough protective paint had been applied.

   

Abarth Warranty
Paint Warranty for 36 months

Abarth Warranty
Not worth the papaer its wrote on

I did a quick search on Google and Perforation was described as 

"perforation, is corrosion forming from inside a metal panel which is rusting from the inside of the panel and works its way through the panel from inside to out".


Abarth 124 rust
Start of rust forming

Rust on Abarth 124 Spider
Start of car cancer

Abarth 124 Rust
What do you think ?

Anyhoo I contacted my local Abarth dealer Richard Hardie down at Silverlink and after a little chat was advised to take my car to their approved body shop, which was Fenham Garage Services in Newcastle. Upon the paint guy inspecting my car and taking some photographs, my dad being with me the guy clearly stated "Ahh yes it looks like the paint has blistered  and is perforated".

Fenham Garage Services then issued an invoice to Richard Hardie, as far as I am aware, and I got back in touch with Richard Hardie to confirm what FGS had said. I then waited, and waited and nothing from Richard Hardie. A call to Richard Hardie and I was informed that Abarth Customer Care had not been back in touch with them. Anyhoo 2 months passed by so I decided to get in touch with Abarth Customer Care myself. I was issued a case number, and then another few months went by with no communication. I got back intouch with Abarth customer care and was informed, that they had been having problems talking to the person involved at Richard Hardie, he just wasn't around. More time ticked away.

Eventually some roughly 7 months later I received an email to say that my claim had been refused, as the "Photographs didn't support the warranty claim for perforated paint". I wrote back saying I didn't agree and commented on the terrible customer service, I had received, I mean come on 7 months, not only that but to be informed by the approved body shop that the paintwork was defective and then not have anyone look at it in person from Fiat or Abarth or whoever I thought was shocking. I then received an email today to say the case was at its conclusion as 

"Additionally, certain criteria must be met for us to investigate further, including factors such as the age of the vehicle, which unfortunately falls outside the parameters we consider." 

"Err hold on the warranty clearly states up to 8 years for perforating rust, and if they are just going off pictures, surely someone should look at the car in person". Its a bit like these damn insurance companies, they are only to willing to fleece people for high premiums, however then not willing to pay out the true price of a replacement vehicle like for like, when you have informed them of how much money and care you have gone into looking after your motor.

Now I know my car was second hand, however it has a full service history and came with a warranty, that is in my opinon not worth the paper it is written on. The service by both the main dealer Richard Hardie and the Abarth customer service has been shocking. Oh and upon further research if you check the Abarth Forums, this doesn't appear just to be a one off, as in just my car. There are many people complaing of the same areas, where these cars are rusting.

In ending I would say the Abarths are a great little car, however like anything else if you aren't looked after by the after sales, well it certainly puts you off any future investments. So I guess this is a tip and words of advice if you are intending on purchasing am Abarth 124 Spider, check under the boot rubber for signs of rust.


Wednesday, 16 October 2024

Arctic ONE Forward Motion

Hi

Many of you may not have heard of The Arctic ONE Foundation I am not sure how I became aquainted with the charity to be honest, whether they discovered me or I discovered them. Thinking back I may have been introduced to Matt Kirby and Bex Stubbings, two of the leading representitives of Arctic ONE when I was being supported by the lovely people over at what was then Pace Rehabilitation. This was way back in 2014. 

Anyhoo from my point of view with dealings with the lovely people over at Arctic ONE what I like about the foundation is their transparency, their passion and how they treat everyone equally, striving to offer support where they can. Arctic ONE makes you feel like part of a big family, and friendships are formed.

  

The Arctic ONE Foundation

A little about what The Arctic ONE Foundation is all about:

The Arctic ONE Foundation provides opportunities for people to get active and enjoy sport.

We believe that Everyone should have the chance to be active. We set up Arctic One to provide opportunities to people with disabilities to get involved in sport through our grants system, our events and training days and through working with other charities to provide resources and raise awareness

Sunday, 22 September 2024

22 Minutes of Fame in Spain

           Well, here I am in Spain, writing parts of this blog, I will finish it upon my return. 

  
Glenn Johnstone. Dragos M, Dragos T
So fortunate to have these guys as friends.


My dad had taken me to Newcastle Airport, on the 17th of September, and came inside with me briefly. The parking charges at Newcastle Airport are extortionate.

It has been some time since I last travelled, 2013 to be exact, when I travelled to America, which was my first time taking a flight and being outside of the UK, so not being experienced I found trying to find my way around the airport quite daunting. I could feel myself getting anxious, however, I am getting better at understanding my inner feelings, so changed this to a more positive "Oh you are just excited". I decided to approach the man on the Bureau de Change and after getting initial directions I figured out the next steps to eventually get to the boarding area.

I was flying with EasyJet and have to say the plane was a little smaller than I expected. My recollection of my last flights all those years ago where of bigger planes with more room, this is of course, when I think about it, was because they were International flights, taking many hours and not just a 2-hour hop over. 

The flight over was without incident, I was in a window seat and as we were coming in towards Alicante I could see the sky light up with flashes of lightning which looked amazing.

Friday, 20 September 2024

Hopefully not to many Err's, Ahh's and Mmm's as I get interviewd at BBC Radio Tees.

 Things are going very well with the short documentary film I was invited to be featured in. So far, the film has won 6 awards, and it is still in the running to be chosen for more. As I posted last week, I had some exciting news about the film being screened in Barcelona and being invited to the event, I am so excited not only to attend the screening in September but also to get to spend some time with some of the amazing people who worked on creating and telling my story about part of my journey and who are also now dear friends and lovely people.

I have often been asked, "Where and when can we see the film?" well, I am sure at some point, it will be available to the general public however, for the time being, it has to do the rounds at film festivals. Rest assured, as soon as I can pop a link to the full film, all 22 minutes of it, I will. The film has quite an emotional effect on me each time I watch it. I think, No, in fact, I know that Dragos has captured something in the film that is very special.

With regards to the film and me now having to find money to privately fund my sporting prosthetic needs, I thought it may be a good idea to get in touch with BBC Radio Tees and see if they would be interested in my journey, encompassing the ups and downs of what has been going on.

Go Fund Me

Within the hour of firing off an email, I got a response from Dave Llewellyn, a producer and presenter over at BBC Radio Tees. Dave simply said, "What a Great Story," and we arranged a quick chat on the phone. I was then invited to BBC Radio Tees on Friday morning (yesterday the 30th of August) to meet with another presenter, Gary Philipson.

BBC Radio Tees Gary Philipson and Glenn. johnstone
Real pleasure to meet with BBC Radio Tees Gary Philipson, what a nice fella.


The interview aired on the 30/08/2024


BBC Radio Tees Interview with Gary Philipson - I totally forgot to mention my Go Fund Me and the title of the Film- which is "Meet The Local Hero - Glenn Johnstone"

The film can be found on Internet Movie Data Base and has a Facebook Page. It has recieeved some very positive feedback, as it deals with things such as disability, love, family and overcoming challenges.


Upon arrival at the Radio station, a parking place had been reserved, and everyone at the station was very friendly and welcoming to my dad and me. We were invited in by Dave and taken upstairs in a small lift to a long waiting area. Here, we were invited to a drink, coffee/tea, and we had a little chat with Dave, before Gary came along and took us through to the Radio room with the recording set up.

On my previous visits, I had done live broadcasts. However, this time round, it was to be a recorded interview that could be edited and aired at a later date on Dave's show.

We pretty much got into the interview straight away, Dave checking his equipment and then starting by saying, "Let's start with your name". It's always slightly nerve-racking when you are trying to think of answering a question, trying not to ramble on and the dreaded "Err's, Ahh's and Mmm's" that can occur as you try to give yourself time to think. From my point of view, poor Dave hardly got a word in. However, he did ask some pertinent questions, which allowed me to explain what was going on.

 

BBC Radio Tees with the Ern
BBC Radio Tees with the Ern

In hindsight, although I had mentioned the short documentary,  I wish I had mentioned the name of the film, which is "Meet the Local Hero - Glenn Johnstone" I think I have mentioned in previous blogs about the film, but I most definitely did not choose the title. I don't proclaim to be any sort of Hero I am just an ordinary bloke who has been through some extraordinary circumstances. What I do find remarkable is, upon my journey, some of the amazing people I have had the great pleasure of meeting. In a world that appears to be going mad, there are some really genuine, nice folk out there with their own interesting and important stories and messages of hope and inspiration.

Following the interview, we said our farewells, and Ern and I went for a cruise in my wee Abarth 124. It was a lovely day, so we had the top down. My dad directed me over to the Transporter Bridge, and I got a few shots for posterity. We then head home via Costco at the Metro Centre, this little car guzzles fuel I can't get it over 31.1 mpg, and I drive like Miss Daisy. 

  

Abarth 124 Spider at Middlesbrough
Abarth 124 Spider at Middlesbrough


Glenn Johnstone
Me and the wee Abarth 124

  
The Ern
Here's one of The Ern

On the ride home, we encountered one speed bump which my car scraped off. This is after having my car fitted with coilovers and lowered, plus larger wheels fitted. As I recall, the bump was somewhere near Wingate. My car also scapes off the mountain of a speed bump at the end of our street. When we got home my dad got changed and jacked up my car, popping it right up on ramps so that he could have a look underneath to see if he could see exactly where it was catching. Ern removed the under tray protecting the exhaust, and it became clear the protective skid pan was the culprit. I'm just pleased it isn't my exhaust I can live with the pan doing its job. My dad refitted the pan, and the car is now all good.


The interview aired on the 30/08/2024




Monday, 9 September 2024

It's 03:20 am and I can't sleep. I'm thinking of writing a book!

Man it's 3:20 am and I just can't get to sleep. I have been lying on the couch all night, my stomach all upset and cramped up, andit feels like its on fire. I am down to 4 prednisolone tablets per day, having reduced them from 8 per day, they are for this newly diagnosed ulcerative colitis. I think the medication creates cortisol, so I haven't been sleeping well for over a month now.

I have always struggled to switch off,  nothing to do with medication. My mind is constantly whirring around, analysing this or debating that. Sometimes it can be very useful and help me problem solve, and then other times it can be a real curse, as I try to tell my mind "It's time for bed now".

writing  an ebook
writing an e-book


Over the years quite a few people have said things to me like " I think you should write a book" or on occasion "Have you ever thought about having a go at motivational speaking". I never really gave it that much thought, just thinking they were being polite when they had heard some of the experiences I had been through. Then lately I gave the book thing a bit more thought. As for the motivational speaking I am not sure. I mean I guess if I was talking about certain stuff that I had experienced, it's then how to get it out, and inspire, the whole purpose of motivational speaking is in the title "Motivation".

Getting back to the book thing, it will be a fictional book, not an autobiography, more of a true story or a memoir, I think they call it. I have been hard at work writing, well typing, I mean it is 2024 and feathered quills are not in vogue. So far I am up to just over 29,000 words. It is a very rough edit, with lots of grammar and spelling mistakes. It recounts part of my journey from taking ill at 27 with a giant cell tumour in my right leg, up until present day. The story is pretty full on, as I have been very honest and not held anything back. There are a lot of dark times mentioned and I try to explain my mindset during these periods, there are also happy times, funny times and a few stories about when I was growing up. I have included very personal things and shared some of my poems and songs, which some people I am sure will think are a load of bollocks, but hey, they are my words and thoughts, special to me so I am not too concerned.

I am by no means a professional writer, or poet, this is just something I would like to try, I guess for myself as much as anything.

The difficult parts:

There are a lot of things to consider when writing a book, for starters it is incredibly difficult writing a true story, and those people involved in that story not being named. If  I do include peoples names I have to then approach them, and get written consent.  I have met that many people over the years, it would take me forever to contact everyone and get consent. So I have attempted to write in such a way that not many people are named. Its a real shame as I would like to thank each one for their support and by naming them. There is nothing I have written that is defamatory in my opinion, a few funny instances I have recounted, that is about it.

Next is finding someone to proof read my work. I'm thinking this could be quite expensive and I write in a slightly unusual way, so don't really want my book changed and lose the essence of myself, if that makes sense. I tend to swear a lot, it is an emotive response, and I use a fair bit of Geordie or Durham'ite dialect, its where I come from and I am proud to have a pit village accent and I think it adds to the authentic nature of my story.

 

writing a book
Writing a book and putting it online

Next on the agenda after doing some research is where to place the book. Amazon KDP, looks like the easiest way to start. I think I can use a company called Draft2Digital to format the e-book and then upload it to Amazon. The thing from what I have read here is not to go for Amazons Free ISBN number. The ISBN is used to identify books, however if I use Amazons free ISBN I am then tied in to only selling the book on Amazon. So I have looked into how to get my own ISBN and think it costs £93 per book. So it would be £93 for an e-book, then £93 for a paperback and again £93 for a hardback. Mind you the paperback and hardback versions are just wishful thinking I mean I may not sell a single copy, but that is the good thing about "Print on demand", I don't have to go out and buy lets say 1000 books and then have them stored at home gathering dust as no one is interested, and I don't have to package them and ship them off. Amazon or any of the other print on demand companies take a percentage of the sales and do everything.

And so that is where I am at. Hopefully if I do get to release my own book, it would get a good reception, not be considered too depressing and who knows inspire, even one person, or help someone to understand they are not alone. Thinking big, it might make me a shed load of money so I can follow my dream and get that house up in Scotland LoL